香港兒童醫院通訊 第八期 （2018年4月）

院長的話

新開始 新希望

我出任香港兒童醫院行政總監剛好兩年，過去幾個月心情比較激動。籌備經年的醫院落成，先頭部隊相繼入伙，大家終於擁有屬於自己的實體醫院。寬敞的空間、春意盎然的花園加上牆上活潑的小動物都令上班更添動力。分散各處的同事可以聚在一起，亦有助加強歸屬感和溝通，事半功倍。

兩年來我不斷向各界介紹兒童醫院的理念和服務，現在置身其中，頓覺這一切不再是紙上談兵，而是真的要發生了！最近來參觀的人士都一致讚賞我們的環境設施媲美海外的兒童醫院。我衷心感謝所有參與設計及工程的團隊，合力為香港建造了一間以病童為本、家庭友善的醫院。對於從事兒科的醫護人員來說，這實在是多年來的夢想成真！

兒童醫院今年第四季就會啟用，社會對我們的關注和期望與日俱增。我不認為這些是壓力，反而提醒我們要多聽意見，提供更優質的臨床服務，努力發展科研與培訓。

每位兒童醫院的同事都是不可或缺的拼圖，擔當締造歷史的重任，在這個全新的環境開創前所未有的服務模式，改善兒科服務。即使過程有多艱辛，只要銘記所做的一切都是為著病童的福祉，將來回首也必是很有意思的一段經歷。希望大家將醫院視作第二個家，朝著共同目標進發，加油！

香港兒童醫院行政總監李子良醫生

香港兒童醫院正式成立

經過四年多的建造工程，醫管局於2月1日正式從建築署接收香港兒童醫院大樓，並在大堂舉行了一個簡單的移交儀式。九龍中醫院聯網總監盧志遠醫生感謝各政府部門協助，令醫院順利落成。他說：「兒童醫院是九龍中聯網一員，但有著其獨特地位，負責統籌全港公立兒科服務。專業的醫護人員在完善硬件配套下，可為病童提供更優質的服務。」

政府其後刊憲，將香港兒童醫院加入為《醫院管理局條例》下的訂明醫院，標誌香港兒童醫院正式成立。

兒童醫院籌劃組同事亦於三月下旬搬家，從伊利沙伯醫院護士宿舍及油麻地分科診所的臨時辦公室，進駐啟德的新醫院。同事們會繼續努力不懈籌備服務及運作細節、採購醫療儀器、測試系統、招聘人手及安排培訓等，為開院做好準備。

緊密溝通攜手助病童

為使服務更切合病童及家庭的需要，香港兒童醫院一直與各持份者保持聯繫。最近院方出席了立法會、九龍城區議會及醫管局九龍區域諮詢委員會會議，講解籌劃工作最新進展，並回應其就臨床服務開展安排、人手招聘、交通配套等議題的關注；另外亦安排了數場參觀，促進交流，精益求精。

• 食物及衞生局局長陳肇始教授及副局長徐德義醫生到訪。
• 醫院管理局大會成員前來參觀。
• 向傳媒介紹病房設計。
• 立法會議員實地視察，對各項設施感到滿意。
• 醫院管理局主席梁智仁教授、行政總裁梁栢賢醫生連同各總部及聯網總監於中央復康花園留影。
• 李子良醫生向九龍城區議會介紹醫院服務，議員均表達希望當局加強來往醫院的公共交通配套，方便市民求診及探病。

香港兒童醫院今年第四季啟用

香港兒童醫院作為第三層轉介中心，將集中處理嚴重、複雜、不常見，及需要跨專科治理的兒科病症，為全港初生至18歲的有需要病童提供診斷、治療及復康，並集中專家就兒科及遺傳疾病加強研究及培訓。

為確保病人安全、服務質素及運作暢順，兒童醫院將分階段投入服務，啟用首階段由今年第四季至2019年第二季，期間會先開設專科門診，住院服務隨後開展。於首階段投入服務的臨床單位包括腫瘤科、腎科、心臟科及心胸外科、小兒外科、兒童深切治療部、新生兒深切治療部、麻醉科、放射科及病理學部等。

醫院設計以「病童為本．家庭友善」為目標，讓患有重病及長期住院的病童及其家人在經歷各種檢查和治療時可減低恐懼及焦慮，改善病人體驗。現在為大家介紹一些特色「景點」！

• 甫進大堂就能感受一室陽光，還有大樹、彩雲和飛鳥迎接。
• 情況穩定的病童可走出病房，到花園呼吸新鮮空氣、進行復康活動、園藝治療和欣賞表演。
• 病房色彩繽紛，富家居親切感，更有活動空間讓病童集體用餐和玩遊戲；家長可在病床邊的摺床留宿，全天候陪伴照顧。
• 八隻可愛動物引領病童到相關樓層，增添趣味。
• 在專科門診等候時可欣賞海濱景致。

醫院的幕後英雄

說起兒科醫護人員，一般人最直接會想起醫生和護士。其實整個診斷、治療及復康的過程中，還有一班雖不顯眼但無比重要的專業人員，默默地陪伴病童走過崎嶇的抗病旅途。他們懷著一顆愛心加入香港兒童醫院，現時遊走於不同醫院裝備自己，並參與籌劃服務運作，希望盡力為病童提供最好的照顧。

一個樣本拯救一條生命

醫務化驗師　楊崇恩

化驗師的工作可能給人沉悶刻板的印象，但楊崇恩對加入兒童醫院卻充滿期盼。她如數家珍地說：「在顯微鏡下，小朋友的化驗樣本千變萬化，今次覆診與上一次可以是兩碼子的事。」

對楊崇恩來說，化驗結果不只是數字，而是牽連一家人的幸福。「一些遺傳病如及早發現，盡快開始治療，是可以控制病情，有機會挽回小朋友的身體機能和智力發展，亦有助父母考慮是否再生育。」

她曾遇上一個患先天性代謝病的病童個案，其母親再次懷孕，整個化驗團隊都為這家人憂心。「雖然素未謀面，我卻完全代入了他們的心情。由在母體開始，至嬰兒出生長大，每次化驗其樣本時，我都提醒自己要更快更敏感，從一大堆數據裡查找是否有異樣。」最終雖證實第二名小孩亦罹患該症，幸好及早介入，並無影響發展。「在兒童醫院相信有更多機會接觸這些罕見病種、尖端科技和研究，我感到很興奮。」

做好準備　掃描診斷更順利

放射師　劉雪韻

劉雪韻從事放射工作十年，但為小童做掃描檢查的經驗卻不多。她不違言以往的經歷都是「痛苦」的，要同時面對哭鬧小朋友及緊張的父母，真有點手足無措。那為甚麼還要來兒童醫院工作？她不假思索道︰「這裡一切以兒童為本，讓我可投放時間和病童及家人溝通。」她表示若掃描過程順利，可提升影像準確度，助醫生作出診斷。

她現時於兩間醫院受訓，學習針對不同年齡、病種及身體部位的掃描技巧。「因為兒童身體不斷發展，如一歲和兩歲幼兒的腦部結構已有分別，比成年人個案需掌握的知識更多更廣，極具挑戰。」

劉雪韻亦擔起「設計師」一職，和同事一起將兒童醫院的磁力共振室布置成一個玩樂空間，並添置模擬器。「我們希望讓病童在一個安全有趣的環境下預習一次掃描流程，到正式檢查時就不會太不安及緊張，可盡快得到最適切的治療。」

心繫兒童　攜手同行

職業治療師　楊麗菁

楊麗菁多年來處理過不同專科的個案，但由開拓大埔那打素醫院的兒童職業治療服務，到成為首批加入兒童醫院的職業治療師，一路走來，始終鍾情兒科。她喜歡挑戰複雜個案，每當病人進展未如理想，下了班都會翻看參考資料，翌日再嘗試不同方法；放假時亦愛逛玩具店為病童選購訓練玩具。

楊麗菁曾照顧一位患有腦癌的女孩，她因視力受損缺乏自信。「我們由興趣聊起，又跟她做手工及自理訓練，一步步建立互信後，她變得積極投入治療，不再依賴。」期間楊麗菁發現女孩的表現未如一般腦癌康復者，懷疑她同時有學習障礙，於是與臨床團隊討論，最終確診並成功轉介她到特殊學校。「及後電話跟進，得知她很享受現時的生活，母親也感激我們的细心安排。」她深信透過團隊合作，可更全面支援病童的復康需要，提升生活質素，希望和不同職系的同事探索最佳的綜合服務模式。

員工培訓及招聘

• 參與醫管局2018/19駐院受訓醫生招聘講座
• 護理同事接受海外培訓後在論壇上分享得著
• 邀請海外專家進行兒童超聲波、電腦掃描及磁力共振培訓

2017年10月至2018年3月新入職及晉升員工

編輯委員會

主席

香港兒童醫院行政總監李子良醫生

成員

香港兒童醫院麻醉科顧問醫生袁文英醫生

香港兒童醫院兒科專科駐院醫生陳宇軒醫生

香港兒童醫院總護士長陳寶妍女士

香港兒童醫院高級藥劑師潘文康先生

醫管局總辦事處機構傳訊經理舒瑞珍女士

編輯

香港兒童醫院總院務主任郭慧敏女士

香港兒童醫院高級行政主任（對外關係及籌募）杜蘊慧女士

香港兒童醫院一級行政主任（對外關係及籌募）董潔欣女士

香港兒童醫院二級行政主任（對外關係及籌募）林瑞敏女士

© 2018 醫院管理局版權所有

如對本通訊有任何意見，歡迎電郵至 enquiry_hkch@ha.org.hk

網上版請瀏覽 www.ha.org.hk/hkch

Hong Kong Children's Hospital Newsletter Issue 8 (April 2018)

Message from HCE

New start, new hope

It has been two years since I took up the role as HKCH’s Hospital Chief Executive. The past few months have been quite emotional for me. After years of meticulous planning, construction of the hospital complex had completed. Colleagues can finally gather under one roof, which should bring about stronger sense of belonging, better communication and higher efficiency. The spacious buildings, scenic gardens and cute animals on the wall also make each work day more enjoyable.

Over the past two years, I have been introducing the hospital’s concepts and services to numerous stakeholders. Now, I have a strong feeling that this is really happening. Our world-class facilities are highly complimented by those who came to visit recently. I am deeply grateful for everyone involved in this extraordinary project. Together, we have built a children-centred and family-friendly hospital for Hong Kong. It’s a dream come true to all paediatricians.

HKCH is scheduled to open from the fourth quarter of 2018. With growing attention and expectations, we should view different opinions and suggestions as motivation to keep enhancing our clinical services, research and training efforts.

To my fellow colleagues, you are all history-makers. Each of you is an important piece in the puzzle of improving the paediatric service for our children. The experience may be tough, but when we look back years later, it would be worthwhile and meaningful. I do wish that you will call HKCH your second home, and let’s join hands in reaching our common goal!

Dr Lee Tsz-leung, HKCH Hospital Chief Executive

HKCH officially established

After over four years of construction, the HKCH complex was officially handed over to HA by the Architectural Services Department (ArchSD) on 1 February. Dr Albert Lo, Cluster Chief Executive of the Kowloon Central Cluster said during the handover ceremony, “Being a member of the KCC, the HKCH will also perform its unique role in coordinating the overall public paediatric service. With the help of the new infrastructure, our healthcare professionals will be able to provide sick children with better service.”

An order to amend the Hospital Authority Ordinance was published in the Gazette by the Government right after to add HKCH to the list of prescribed HA hospitals, marking the official establishment of the HKCH.

Meanwhile, the HKCH commissioning team has moved to the new hospital site in Kai Tak from the temporary offices in the Queen Elizabeth Hospital Nurses Quarters and the Yau Ma Tei Specialist Clinic. Colleagues are now working in full gear in their respective professional area, including services and operations planning, procurement, systems testing, recruitment and training, to prepare for the hospital’s opening.

Enhancing communication for the wellbeing of sick children

The HKCH has been maintaining a close connection with different stakeholders. We recently attended meetings of the Legislative Council, the Kowloon City District Council and the HA Kowloon Regional Advisory Committee to update the latest progress and respond to concerns on issues like service commencement arrangements, recruitment, ad transport accessibility. A series of site visits were also arranged to foster exchange.

• Visit of Prof. Sophia Chan, Secretary for Food and Health, and Dr Chui Tak-yi, Under Secretary for Food and Health.
• Visit of Hospital Authority Board Members.
• Media is given a tour of the ward.
• Legislative Council Members pay a visit to HKCH and acclaim its designs and facilities.
• HA Chairman Prof. John Leong and Chief Executive Dr Leung Pak-yin, together with some HA Directors and Cluster Chief Executives after taking a stroll in the Central Rehabilitation Garden.
• While being briefed about HKCH’s service, Members of the Kowloon City District Council express that there is an imminent need to strengthen the public transport network.

HKCH to open by phases in Q4 2018

HKCH will serve as the tertiary referral centre for complex, serious and uncommon paediatric cases requiring multidisciplinary management, providing diagnosis, treatment and rehabilitation for needy patients from birth to 18 years of age territory-wide. It will also pool together expertise to strengthen research and training regarding paediatric and genetic diseases.

HKCH will commence service by phases to ensure patient safety, service quality and operational smoothness. The first phase of service commencement spans from Q4 2018 to Q2 2019. It will begin with specialist outpatient service, followed by the gradual opening of inpatient service.

The hospital has adopted a children-centred and family-friendly design to create a better patient experience. Let’s have a look at special features.

• The lobby welcomes visitors with abundant sunlight and nature-inspired décor.
• Clinical condition permitting, children can have a breath of fresh air in the garden while taking part in rehab activities, horticulture therapy and performances.
• Colourful decals create a home-like ambience in the ward. Children can dine and play in the communal activity space, while foldable beds in the cubicle allow parents to take care of their loved ones overnight.
• Eight cute animals lead children to respective floors, adding fun to the treatment journey.
• One can enjoy the relaxing sea view while waiting at the specialist outpatient clinic.

Heroes Behind the Scenes

Doctors and nurses are usually seen as the most direct carers to sick children in a hospital, but outside the spotlight, there are other healthcare professionals who are equally crucial in the patient journey. With love and passion, these individuals have joined HKCH and are participating in training and service planning. They are dedicated to provide the best care to children during their fight against diseases.

One sample, one life

Sue Yeung, Medical Technologist

The job of a Medical Technologist may be seen as monotonous, but Sue Yeung has joined HKCH with great expectations. “The laboratory sample of a child can be ever-changing under the microscope, and varies profoundly from one follow-up investigation to another,” she said.

For Sue, a laboratory result is much more that numbers. It can affect the wellbeing of the whole family. “If genetic disorders could be detected earlier, the child’s condition could be better managed. It could also assist parents in planning for the next pregnancy.”

Sue once encountered a case with inborn errors of metabolism, which the mother was pregnant again. Her team was all worried for the family. “I could fully stand their shoes though we had never met. From the mother’s pregnancy to different development stages of the infant, I promoted myself to work quickly on their samples and look carefully for any abnormality from a bunch of data.” The infant was eventually diagnosed with the same disorder. Fortunately, their early intervention has safeguarded its future development. She said, “I am excited and believe that HKCH will offer me with more opportunities in facing these rare diseases, cutting-edge technologies and research!”

Getting ready for a sharper image

Mong Lau, Radiographer

Although Mong Lau has been a radiographer for ten years, she did not have much experience in performing imaging for children, and almost every occasion was a nightmare. “It was so hard managing crying kids and nervous parents at the same time,” she said. It seems counterintuitive that she has chosen to join the HKCH. She explained, “This children-centred hospital would allow me to devote more time to communicate with patients and their family. When the scanning process is smooth, we can produce better images which facilitate doctors in making accurate diagnosis.”

Mong is now receiving training in two different hospitals and acquiring practical skills on scanning children of different age groups and illnesses. “Children grow so rapidly. For example, the brain structure of an infant can be very different than that of a toddler. Extra knowledge is needed and this is very challenging.”

Mong has also taken up the role as an “interior designer” for the MRI suite equipped with a simulator. “By arranging trials in a playful and safe environment, we wish to ease the children’s anxiety during the real scan. It should help to reach diagnosis more easily so that appropriate treatment can begin sooner,” Mong affirmed.

Putting children’s needs close to heart

Hellen Yang, Occupational Therapist

From developing the paediatric occupational therapy service in AHNH to becoming one of the first occupational therapists in HKCH, Hellen Yang has wholeheartedly devoted to paediatric care. After work, she spends much time looking up reference materials to tackle challenging cases. During weekends, you can often find her in toy stores shopping for training toys.

She shared the story of young girl under her care. Affected by brain cancer with compromised eye sight, the girl had low self-esteem. “I tried to open her heart by talking about her hobbies, and then did some therapeutic arts and crafts. As trust gradually built, she became more proactive in treatment.” Hellen suspected that the girl had underlying learning disorder which prompted her to arrange assessment and discussion with the clinical team. “We arranged a special school placement for her at last. Hearing her cheerful voice during phone follow-up was such an encouragement. Her mother was also grateful for our effort.” Hellen believes that an integrated approach can provide sick children with the best rehabilitation support and promote quality of life.

Staff Training and Recruitment

• Joining a career talk for the 2018/19 HA Resident Training Programme
• Sharing forum of overseas corporate scholarship programme
• Commissioned training on paediatric ultrasonography, CT and MRI imaging

Newly Recruited and Promoted Staff from October 2017 to March 2018

EDITORIAL BOARD

Chairperson

Dr Lee Tsz-leung, Hospital Chief Executive, HKCH

Members

Dr Vivian Yuen, Consultant (Anaesthesia), HKCH

Dr Eugene Chan, Resident Specialist (Paediatrics), HKCH

Ms Vivian Chan, Chief Nursing Officer, HKCH

Mr Freddie Poon, Senior Pharmacist, HKCH

Ms Linda Shu, Manager (Corp Comm), HAHO

Editors

Ms Miscelle Kwok, Chief Hospital Administrator, HKCH

Ms Vivian To, SEO (External Relations & Donation Management), HKCH

Ms Haze Tung, EOI (External Relations & Donation Management), HKCH

Ms Sarah Lam, EOII (External Relations & Donation Management), HKCH

Copyright © 2018 Hospital Authority

Please send comments and suggestions to enquiry_hkch@ha.org.hk

Read the Hong Kong Children's Hospital Newsletter online at www.ha.org.hk/hkch