HKCH 5th Anniversary Commemorative Album
Overview
Foreword
Mrs Ann Kung, Chairman of Hospital Governing Committee
It is with great joy that I write to commemorate the fifth anniversary of the Hong Kong Children's Hospital. As we celebrate this milestone, it is important to first express our deep gratitude to the Hong Kong Government and the Hospital Authority for their leadership and belief in the mission of establishing the HKCH.
From the moment we opened our door in 2018, we have strived to become a beacon of hope and healing for children facing complex health challenges. By working with all hospitals in the paediatric service network, we have built a centre of excellence that focuses on providing multidisciplinary care, research, and training. We have therefore become a symbol of unwavering dedication, thanks to the strengths of HKCH's exceptional team, the collaborative efforts from colleagues of the Hospital Authority, the contribution of the medical communities, the generosity of our donors, and the support from the Hospital Governing Committee under the chairmanship of Mr John Lee.
HKCH has become a place where heartwarming stories happen every day. It is a testament to the expertise and commitment of HKCH's professionals and support teams who tirelessly work to provide compassionate care to the children and their families round the clock. We have achieved such results not only with what is available, but also going the extra miles to explore all possibilities.
While there may not yet be an answer to all cases, HKCH remains committed to achieving excellence in clinical services, and to push boundaries and explore new frontiers in paediatric medicine. We will continue to make a difference for our young patients and their families, and we will continue to learn, care, and smile.
Mr John Lee, Former Chairman of Hospital Governing Committee (April 2018 - March 2024)
The Hong Kong Children's Hospital has been designated as a centre of excellence since its founding. I am truly honoured to have served as the first Hospital Governing Committee Chairman. Throughout the past few years, the hospital has overcome many challenges, which led to its development today. It is now a designated centre for training paediatric specialties, and recognised as one of the best children's hospitals in the region to treat complex diseases.
HKCH would not have been able to achieve its current status without the strong support of the government and the Hospital Authority, and most importantly, the commitment and hard work of its staff. Collaboration with universities also impacts greatly on its research and clinical development.
Looking ahead, HKCH is well positioned to take on the role of a "super connector" for complex paediatric disease management and research. I expect HKCH will expand its collaborations internationally and with Mainland institutions. These include cross-boundary consultations, joint research, training, education, staff exchanges and conferences. On the domestic front, I believe further collaborations with the universities and consolidation of training will prepare HKCH to becoming a formal teaching hospital in the near future.
I wish to express my heartfelt thanks to all HKCH staff for their never-ending support and to those retired who worked tirelessly during the commissioning phase. I had the privilege of working with you over the past six years. I trust that together we have contributed to the betterment of Hong Kong's public healthcare, in one way or another.
Mrs Ann Kung has succeeded me as the new chairman. I call upon your support to her in HKCH's continuous quest for excellence. I wish HKCH, its management and staff every success in their future endeavours. Please accept my sincere "thank you" once again.
Dr Lee Tsz-leung, Hospital Chief Executive
In 2016, I was appointed the first Hospital Chief Executive of HKCH. I have also been serving as the Co-chairman of the Coordinating Committee in Paediatrics of the Hospital Authority. Besides infrastructure, the commissioning team back then was given the mission of working out an innovative hub-and-spoke service model according to the policy direction of the government and Hospital Authority. As a paediatrician, I was humbled that I could contribute my clinical and administrative experience to lead this unprecedented project.
HKCH commenced service in December 2018. Within this short period (which for the most part was heavily impacted by the pandemic), we have overcome hurdle after hurdle, and broken many new grounds. We have accomplished the task of providing a full spectrum of tertiary services, covering not only paediatric subspecialties, but also surgical disciplines, together with the professional support from radiology, pathology, anaesthesiology, allied health and pharmacy, all with a paediatric focus. I can confidently say that our current service could benchmark with international standards.
As the referral centre for uncommon disorders, HKCH contributes significantly to the Hospital Authority's prenatal testing and newborn screening programmes, and our Department of Clinical Genetics provides assessment, diagnostics and genetic counselling for patients and families across the territory.
Having achieved these important milestones, I am most grateful to all those who have supported HKCH's development all these years, and colleagues who wholeheartedly practise our culture, "learning, caring and smiling", in their daily work.
There are many exciting opportunities ahead. We will set up a breastmilk bank and expand the uncommon disorders database. HKCH also strives to play the role of a "paediatrics super connector" to network with international and national institutions for clinical, research and training advancement. With time, these connections would help us gain the recognition as a centre of excellence.
Hospital Governing Committee (in alphabetical order of last names)
Current members
Chairman
- Mrs Ann Kung Yeung Yun-chi, BBS, JP
Ex-officio members
- Dr Eric Cheung Fuk-chi
- Dr Lee Tsz-leung, MH
Members
- Dr Ricky Chan Wai-keung
- Ms Winnie Chiu Wing-kwan, JP
- Prof. Fok Tai-fai, SBS, JP
- Prof. Lau Chak-sing, BBS, JP
- Mr Oscar Lee Tsan
- Mr William Lo Chi-chung
- Prof. Frances Wong Kam-yuet
Former members
- Mr John Lee Luen-wai, BBS, JP (Chairman, April 2018 - March 2024)
- Dr Albert Lo Chi-yuen (Ex-officio Member)
- Ms Dana Chan Dan-nar
- Ms Chau Hei-man
- Mr Cho Wui-hung, MH
- Mrs Nina Lam Lee Yuen-bing, MH
- Prof. Gabriel Matthew Leung, GBS, JP
- Mr Patrick Ma Ching-hang, BBS, JP
- Prof. Grace Tang Wai-king, SBS, JP
- Prof. Maurice Yap Keng-hung, JP
- Mr Richard Yuen Ming-fai, GBS, JP
Organisation Chart
Hospital Authority
Kowloon Central Cluster
Dr Eric Cheung, Cluster Chief Executive
Hong Kong Children's Hospital
Dr Lee Tsz-leung, MH, Hospital Chief Executive
-
Corporate Services
- Ms Miscelle Kwok, General Manager (Administrative Services)
- Mr Ken Lee, General Manager (Financial Services)
- Ms Sandy Lam, Deputizing Senior Human Resources Manager
-
Nursing
- Ms Connie Wan, General Manager (Nursing)
-
Quality & Safety
- Dr Elaine Kan, Hospital Coordinator
-
Clinical Services
- Dr Vivian Yuen, Chief of Service, Anaesthesiology & Perioperative Medicine
- Dr Nicholson Yam, Consultant in-charge, Cardiothoracic Surgery
- Dr Luk Ho-ming, Chief of Service, Clinical Genetics
- Dr Fung Siu-chung, Consultant in-charge, Dentistry & Maxillofacial Surgery
- Dr Lo Fook-wai, Service Coordinator, Otorhinolaryngology
- Dr Wilson Ho, Consultant in-charge, Neurosurgery
- Prof. Jason Yam, Team Head, Ophthalmology
- Dr Chow Wang, Consultant in-charge, Orthopaedics & Traumatology
- Dr Rosanna Wong, Chief of Service, Paediatrics & Adolescent Medicine
- Dr Peter Tam, Chief of Service, Paediatric Surgery
- Dr Jason So, Chief of Service, Pathology
- Dr Elaine Kan, Chief of Service, Radiology
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Allied Health
- Dr Stephen Chan, Manager, Integrated Rehabilitation Centre
- Ms Karre Chung, Social Work Officer, Medical Social Services Unit
- Mr Watson Wong, Department Manager, Pathology
- Mr Lam Tsan-pun, Department Manager, Radiology
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Pharmacy
- Mr Freddie Poon, Department Manager, Pharmacy
Scope of Clinical Services
Paediatrics & Adolescent Medicine
- Cardiology
- Critical Care Transport
- Dermatology
- Endocrinology
- Gastroenterology
- Haematology & Oncology
- Rheumatology & Immunology
- Metabolic Medicine
- Neonatology
- Nephrology
- Neurology
- Paediatric Intensive Care
- Palliative Care
- Respiratory Medicine
Surgical Services
- Cardiothoracic Surgery
- Dentistry & Maxillofacial Surgery
- Otorhinolaryngology
- Neurosurgery
- Ophthalmology
- Orthopaedics & Traumatology
- Paediatric Surgery
Clinical Genetics
Anaesthesiology & Perioperative Medicine
Pathology
Radiology
Pharmacy
Allied Health
- Clinical Psychology
- Dietetics
- Occupational Therapy
- Physiotherapy
- Prosthetic & Orthotics
- Speech Therapy
Major Statistics
Clinical Services
- No. of beds*: 300
- No. of specialist outpatient clinics*: 154
- No. of specialist outpatient clinic attendances#: 188,444
- No. of allied health (outpatient) attendances#: 47,996
- Total discharges and deaths#: 75,519
- No. of operations done inside operating theatres#: 8,847
- No. of haematopoietic stem cell transplants#: 184
- No. kidney of transplants#: 18
- No. of heart transplants#: 3
- No. of extracorporeal membrane oxygenation runs#: 57
Manpower*
Total: 1,682
- Medical: 191
- Nursing: 416
- Allied health: 244
- Others: 831
Note: on full-time equivalent (FTE) basis including all full-time and part-time staff in HA's workforce i.e. permanent, contract and temporary
*Snapshot on 31 December 2023
#Accumulated figures from service commencement to 31 December 2023
Milestones
2007
Government announced in Policy Address to set up a centre of excellence in paediatrics (CEP)
2011
Report on Review of Paediatric Services in Hospital Authority published with recommendations to reorganise public paediatric services to prepare for CEP establishment
2013
Legislative Council Finance Committee approved $13 billion project to establish the CEP
2014
The hospital officially named as Hong Kong Children's Hospital at the ground-breaking ceremony
2016
Dr Lee Tsz-leung assumed position as the first Hospital Chief Executive
2017
Construction works completed
2018.2
Hospital complex handover ceremony
Government published notice in Gazette to add HKCH to the list of prescribed HA hospitals
2018.4
Hospital Governing Committee established
2018.12
Specialist Outpatient Clinic commenced service
2019.3
Inpatient service commenced
2019.6
HKCH Opening Ceremony
2019.8
Partner Appreciation & Planting Day
2019.11
HKCH Charitable Foundation established
2020
Fight against COVID-19 pandemic began
2021.11
Began to recruit subjects for Hong Kong Genome Project
2022.2
Children Community Vaccination Centre opened
2022.12
Performed heart transplant on the youngest recipient ever, involving Hong Kong's first cross-boundary organ donation
2023.7
Took up the Clinical Genetic Service under the Department of Health
Performed Hong Kong's first ABO incompatible kidney transplant in children
2023.11
Performed the first gene therapy in Hong Kong
More exciting development to come
Our Culture
Learning
Never stop acquiring new knowledge and skills. Learn the best clinical practices from international counterparts. Strive for continuous improvement to attain excellence.
Caring
Show your empathy and compassion to provide holistic care to patients. Treat them as you would to your own family to build a harmonious relationship and achieve the best therapeutic outcome.
Smiling
Your smiles from the heart can create a positive atmosphere and influence colleagues and patients around you.
The Beginning of a Dream
A Long Journey of Dream Weaving
For fifty years, it had been the dream of paediatricians, patients and families to have a designated children's hospital in Hong Kong. With the relentless effort of many visionaries, advocates and stakeholders, the dream finally came to fruition.
In 2007, the government announced in the Policy Address its intention to set up a centre of excellence in paediatrics (CEP) to raise professional standards and patient care through cross-fertilisation of expertise, enhanced research and training. A government steering committee comprising of officials, healthcare professionals, academics, as well as NGO and patient group representatives was then formed to examine its service scope, operational model and infrastructure. A building site was later identified in the Kai Tak Development Area. The proposed CEP would concentrate low-volume, high-complexity conditions with purpose-built, age-appropriate facilities that cater for the needs of paediatric patients and families.
To prepare for the establishment of the CEP, the Hospital Authority conducted a comprehensive review on its paediatric services. It involved extensive consultation with healthcare professionals across all related hospitals and disciplines, and the formation of 18 specialty / subspecialty groups. There were in-depth deliberations on the current service gaps, future service models, roles delineation, and development aspirations. It also looked into international experience and conducted service demand projection.
The report was published in 2011. With the consensus reached, it recommended to reorganise the paediatric service network by adopting a hub-and-spoke model. The CEP would serve as the tertiary referral centre for complex cases, while other hospitals with paediatric department would provide emergency, secondary (including stepdown), and community paediatric care. The CEP should also partner with universities and the industry in research and training.
In June 2013, funding support was passed by the Finance Committee of the Legislative Council for the $13 billion project to establish the CEP.
The following is a photo caption:
- The 2011 report formulated recommendations on the reconfiguration of public paediatric services and roles of the CEP.
Marching towards the Common Goal
Once the plan to build the new hospital was confirmed, preparatory work was in full swing. As the project involved large-scale construction, as well as a massive number of revolutionary ideas and stakeholders, the complexity was unprecedented.
The following were photo captions:
- Former Chief Secretary for Administration, Mrs Carrie Lam officiated at the hospital's ground-breaking ceremony in February 2014, and announced its official name as the Hong Kong Children's Hospital.
- Video snapshots of groundbreaking ceremony
- The new hospital sits on the former south apron of the Kai Tak Airport. Construction works began in August 2013 and was completed in late 2017. There are two towers with a total construction floor area of 165,000m2.
Paediatric network reconfiguration
A commissioning team was set up under the HA Strategy & Planning Division. One of the most challenging missions was to reorganise the paediatric service network. More than 20 clinical work groups for respective paediatric subspecialties and services were formed to deliberate the ideal service models, patient referral mechanism, translocation of existing services, manpower and patients to the new hospital, and align clinical guidelines.
The following are photo captions:
- The commissioning team in 2016.
- Commissioning Service Coordinators for various specialties / sub-specialties joined regular taskforce meetings to discuss matters related to clinical service commencement.
- Discussion on paediatric service reconfiguration in the HA Coordinating Committee in Paediatrics.
Manpower planning
To ensure there would be adequate capable staff, it was planned to transfer respective clinical teams from regional hospitals, and advance recruitment was conducted. Staff went through local and overseas training to accumulate experience. As it would be the first time for staff from many hospitals and two universities to work under the same roof, there were extra difficulties to be ironed out.
The following are photo captions:
- Visit of a group of frontline doctors organised by the Hong Kong College of Paediatricians. Some of them joined HKCH later on.
- Staff forum received enthusiastic response.
- Orientation for nurses recruited into the workforce.
Actualising the grand plans
At the same time, countless people spent painstaking effort to refine the physical designs, monitor works progress, procure equipment and furniture, test systems and formulate workflows with end users' needs in mind.
The following are photo captions:
- A mock-up site was set up in Yuen Long. Visits were arranged to collect feedback on the physical design.
- Dr Lily Chiu, Consultant of the commissioning team inspected the construction site with staff.
- The commissioning team worked in the temporary office in the Queen Elizabeth Hospital Nurses Quarters for several years.
- Clinical staff inspected the mock-up facilities in the hybrid cardiac catheterization lab.
Soliciting support
Stakeholder communication and promulgation are keys to build trust. Targeting the government, healthcare sector, patient groups, NGOs, Legislative Council, District Councils, media, staff and public, numerous briefings, visits, focus groups etc. were arranged to introduce the hospital, collect feedback and answer queries.
The following are photo captions:
- Dr Lo Su-vui, Director (Strategy & Planning) of HA hosted a briefing for NGOs and patient groups.
- Reporters interviewed Hospital Chief Executive Dr Lee Tsz-leung after their preview of the hospital interior.
- Some District Council members visited to learn about the hospital's facilities and latest progress.
- Chief Secretary Mr Matthew Cheung visited with the Kowloon City District Officer and District Council Chairman. He said HKCH impressed him as a place that would bring hope and love to child patients.
- Demonstrating features of the hydrotherapy pool to the media.
- Visit of senior executives of HA and the seven clusters.
It's happening
As the opening date was approaching, final preparations became more and more intense to ensure service quality, patient safety and smoothness in operation.
The following are photo captions:
- The hospital complex was handed over by the Architectural Services Department in February 2018.
- First meeting of the Hospital Governing Committee.
- A cross-department drill to examine the patient flow in the Specialist Outpatient Clinic.
- Celebration of moving in.
We Are Open
After years of planning, HKCH finally commenced service on 18 December 2018, beginning with the Specialist Outpatient Clinic. Nephrology, Haematology & Oncology, Metabolic Medicine, Pathology, Radiology and Pharmacy started operation in parallel.
The following are photo captions:
- Clinical teams gathered excitedly at the Specialist Outpatient Clinic right before it opened its door to patients.
- Cluster Chief Executive Dr Albert Lo, Hospital Governing Committee Chairman Mr John Lee and Hospital Chief Executive Dr Lee Tsz-leung wished for a smooth opening.
- Nine nephrology patients from the Princess Margaret Hospital attended the clinic on the first day.
- The first patient of the Specialist Outpatient Clinic told the media that he felt comfortable in this nice hospital, while his mother said Hong Kong should be proud to have a facility with such good design and services.
Inpatient Service Commenced
Inpatient service commenced on 27 March 2019. The Haematology & Oncology Ward and Paediatric Intensive Care Unit began operation that day. Wards of other specialties were opened by phases later on.
The following are photo captions:
- Patients were welcomed by cute decorations and gifts.
- Everyone stood ready in the Haematology & Oncology Ward 5NE to receive the first batch of inpatients.
- Ten patients were transferred from the Children's Cancer Centre of the Prince of Wales Hospital.
- Prof. Godfrey Chan, Chief of Service (Paediatrics & Adolescent Medicine) and Prof. Li Chi-kong of Haematology & Oncology briefed reporters on the operation.
- Operating theatres started service on the same day.
Grand Opening Marked New Page in Paediatric Service
The hospital opening ceremony was held on 21 June 2019. Over 300 guests attended to witness the important milestone in public paediatric service.
The following are photo captions:
- The carnival theme and participation of patients added some heartwarming touches in the ceremony, and highlighted HKCH as a children-centred hospital.
- Guests were touched by the performance of the KIDS' Dream Choir formed by children with kidney diseases.
- The ceremony was held in Tower B lobby.
- Prof. Sophia Chan, Secretary for Food & Health officiated at the ceremony. The platform party also included representatives of HA, Kowloon Central Cluster, HKCH and medical faculty of HKU and CUHK.
- Prof. Sophia Chan with a group of frontline healthcare workers.
- Video snapshots of opening ceremony
Let the Kids Dress Well
To tie in with the commencement of inpatient service, the "Dress Well" project was launched with the donation and creative input of the Hong Kong Disneyland Resort. A line of unique patient outfits combining visual appeal, comfort and functionality were produced to meet children's specific needs. The hidden Disney characters also give a homey feel and help uplift the healing experience.
The following are photo captions:
- Launching ceremony of the Dress Well project.
- The patient clothing line includes regular pajamas, jackets and tops for intravenous procedures. Different colour themes are adopted for boys and girls.
- Dress Well project introduction
Pursuit of Excellence
Hub of the Paediatric Service Network
Under the new hub-and-spoke model, HKCH serves as the tertiary referral centre for complex, serious and uncommon paediatric cases requiring multidisciplinary management; while regional hospitals provide secondary, acute, emergency and community paediatric care. All these hospitals work together as a coordinated and coherent paediatric service network.
Since the opening of HKCH, related clinical services have gradually moved in from other hospitals. Concentrating caseload, expertise and advanced equipment at HKCH helps enhance the overall service standard by accumulating clinical experience, fostering sub-specialty development and aligning treatment protocols.
The hub-and-spoke model has been put into practice over the past few years. Various specialties have already defined clear patient referral criteria for different conditions, so paediatric patients in Hong Kong can receive appropriate treatment in the appropriate hospitals.
The following are photo captions:
- The surgical ward welcomed the first batch of patients transferred from the United Christian Hospital with a party.
- Translocation of paediatric cardiology and cardiothoracic services from the Queen Mary Hospital was completed in December 2020.
- Merging of the five HA children's cancer centres was completed in July 2019.
Granting a Second Life - the Paediatric Transplant Centre of Hong Kong
HKCH is now the only centre in Hong Kong to perform haematopoietic stem cell transplant, kidney transplant and heart transplant for the paediatric population.
Both autologous and allogeneic haematopoietic stem cell transplants are performed at HKCH. Haploidentical transplant has also been introduced while complications are effectively managed to increase the donor pool and success rate to benefit more patients.
As for kidney transplant, the one-year graft survival rate from cadaveric and living donors is 100%. In 2023, we achieved a breakthrough by performing the first ABO incompatible kidney transplant in children in Hong Kong.
In 2022, HKCH performed the first cross-boundary organ donation case in Hong Kong. The donor's heart was transplanted into a 4-month old baby which saved her precious life.
The following are photo captions:
- Secretary for Health Prof. Lo Chung-mau visited Cleo, Hong Kong's youngest ever heart transplant recipient. She was also the first beneficiary of cross-boundary organ donation. Her parents were grateful to the Mainland authorities, HKSAR Government and clinical teams for granting Cleo a second life.
- A staff carefully processing the harvested haemopoietic stem cells in the stem cell lab.
- A patient receiving haemopoietic stem cells infusion.
- Haemopoietic stem cells are stored in cryogenic containers filled with liquid nitrogen.
- The patient who received the first ABO incompatible kidney transplant underwent rounds of immunoadsorption procedure prior to the surgery to prevent rejection.
- In 2021, two six-year-old patients were matched with donated kidneys at the same time. The teams raced against time and successfully performed consecutive transplant operations for them.
- The first cross-boundary organ donation took place in December 2022. The HKCH transplant team retrieved the donor's heart at the boundary control point.
- The National Health Commission delegation visited HKCH to get a better grasp of the paediatric organ donation arrangement and transplant service.
Sole ECMO and Cardiac Catheterization Centre for Children
HKCH is the referral centre for children with congenital and acquired heart diseases in Hong Kong. With top equipment and expertise, it is the only HA hospital that provides paediatric extracorporeal membrane oxygenation (ECMO), diagnostic catheterization and intervention services.
The following are photo captions:
- The hybrid cardiac cath lab / theatre is armed with advanced imaging, catheterization and surgical facilities to allow Cardiology, Cardiothoracic Surgery and Radiology to perform diagnostic, interventional and surgical procedures in the same location. This could reduce the risks of patient transfer, trauma and infection, and speed up recovery.
- The cardiopulmonary bypass machine is used to maintain patients' circulatory and respiratory functions during surgery.
- ECMO provides mechanical life support for children with critical circulatory and pulmonary conditions. Patients requiring ECMO are closely monitored by specialised personnel in the Intensive Care Unit until their condition improves or they can undergo curative treatment such as organ transplant.
Complex Surgeries in Skilled Hands
HKCH is one of the three paediatric surgery centres in HA. While the territory's most complex and major operations are chiefly performed in the HKCH centre, its sub-specialties (i.e. urology, cleft surgery, surgical oncology, hepatobiliary surgery, thoracic surgery, and vascular anomalies) also consists of paediatric surgeons from the other two centres, gathering advanced expertise and experience under one roof.
HKCH is also the main neonatal surgery centre in Hong Kong, performing over 80% of the neonatal operations in all public hospitals in 2023. At the same time, quality surgical services are provided by Cardiothoracic Surgery, Dentistry & Maxillofacial Surgery, Ophthalmology, Orthopaedics, Otorhinolaryngology, and Neurosurgery.
The following are photo captions:
- Cleft lip and palate surgery is one of the services of the Department of Paediatric Surgery.
- Neurosurgeons operating on a baby with craniosynostosis, a rare disorder causing head deformation.
- The neonatal intensive care unit is equipped with a satellite operating theatre to perform urgent procedures for babies under general anaesthesia. Former Chief Executive Mrs Carrie Lam was given a tour of the facility.
Critical Care Transport Races against Time
Under the hub-and-spoke model of the paediatric service network, some critically ill patients need to be transferred from the ICU of different regional hospitals to HKCH for multidisciplinary care. HKCH therefore set up the first designated critical care transport (CCT) team which is made up of specially trained doctors and nurses to provide a safe and efficient transfer service to save lives.
The following are photo captions:
- The generous donation of the Ho Kam Yung Foundation enabled the CCT team to acquire a designated vehicle to power up the service. It swiftly delivers team members and medical equipment to regional hospitals so patients could get top quality treatment in the fastest possible time safely.
- The CCT team responds to emergency transport requests in a timely manner. After confirming the patient condition and inter-hospital transfer logistics, they will set off to retrieve the patient right away.
- The CCT team is equipped with advanced medical equipment such as neonatal incubator, high-frequency ventilator and nitric oxide machine. During the ambulance ride to HKCH, they will closely monitor the patients and use a 5G communication system to transmit real-time footages and clinical data.
- Introduction of critical care transport vehicle
Era of Genetics and Genomics
The HKCH plays a key role in the development of genetics and genomic medicine in Hong Kong. As the territory-wide referral centre for uncommon genetic disorders, we shoulder the task to enhance the treatment, research, talent pool development and knowledge of these diseases.
Our Department of Clinical Genetics is the first such unit in HA. It consists of specialists in Genetics and Genomics (Paediatrics), nurses, genetic counsellors and bioinformaticians. Patients and their families are offered one-stop care including assessment, investigation, diagnosis, treatment, counselling and prevention.
In the war against uncommon diseases, the Department of Pathology is armed with an arsenal of advanced technologies to provide a wide spectrum of tests for precise diagnosis, prognostication and monitoring, enabling clinicians to formulate treatment plans.
The following are photo captions:
- During genetic counselling, detailed explanations are given to patients and families about their genetic reports, potential symptoms and complications, mode of inheritance, means of prevention, and reproductive risks.
- Next generation sequencers are used to perform massively parallel sequencing of DNA to yield comprehensive analysis results.
- The genetic and genomic division of the Department of Pathology conducts tests for inherited diseases for patients and family members.
- Introduction of genetics and genomics services
Gene Therapy Makes the Impossible Possible
In November 2023, HKCH administered the first gene therapy in Hong Kong history to a 10-month-old boy with spinal muscular atrophy (SMA).
SMA patients are unable to produce enough functioning proteins due to genetic defects, resulting in progressive loss of movement, breathing and swallowing abilities. This one-time gene therapy brings new hope to SMA children by improving their survival rate, and freeing them from lifelong medications, wheelchair and ventilator. HKCH was well prepared for this milestone case. A multidisciplinary team of more than 30 professionals had received training to make sure all hardware and workflows meet the required standards.
The following are photo captions:
- The baby boy receiving the life-changing gene therapy infusion. His parents expressed gratitude towards HA and the doctor in charge for introducing the new therapy, and the clinical team for their good care.
- Parents' sharing
- Aseptic preparation of the drug. The gene therapy involves injecting a harmless viral vector carrying the corresponding genes into the patient's body to compensate for congenital deficiencies.
CAR-T Cell Therapy Opens New Door
HKCH is one of the centres in HA that provide chimeric antigen receptor T-cell (CAR-T cell) therapy. Designated teams and related apheresis, cryopreservation and isolation facilities are in place to serve patients with specified refractory or relapsed acute lymphoblastic leukaemia or lymphoma. T cells harvested from a patient are sent abroad for genetic modification. They are then transported back to HKCH and re-infused into the patient to identify and eliminate the cancer cells.
The following is a photo caption:
- A patient took a photo with his care team after receiving CAR-T cells infusion.
Promote Research for Medical Breakthroughs
Promoting research is one of the missions of HKCH. We collaborate closely with universities in conducting basic and translational research on paediatric and genetic diseases and take part in clinical trials, aiming to stimulate innovative clinical practices that can benefit patient care, and discover medical breakthroughs with far-reaching impact.
Besides purpose-built infrastructure including research laboratories, clinical trial centre and data centre, there are dedicated research committees and office to fully support the research activities and development at HKCH.
Designated funding has been granted by the Health & Medical Research Fund for HKCH to conduct commissioned paediatric research projects. To nurture the next generation of medical scientists, we also set up The D. H. Chen Foundation Clinical Research Fellowship Program with the generous donation from the Foundation.
The following is a photo caption:
- HKCH is part of a multinational phase III clinical trial to study the efficacy and safety of using gene therapy to treat Duchenne muscular dystrophy, which is the first gene therapy trial in Hong Kong. A participant is undergoing infusion according to study protocol.
Nurturing Paediatric Professionals
HKCH plays an important role of nurturing paediatric healthcare professionals during different stages of their career to raise the overall service standard.
We receive designated government funding to arrange local and overseas training for healthcare professionals, as well as commissioned training by experts in respective fields. HKCH is the teaching site for medical students of the University of Hong Kong and the Chinese University of Hong Kong. Simulation Training Centre was also set up to run practical training courses for all paediatric-related healthcare professionals in Hong Kong.
The following are photo captions:
- Training course on extracorporeal membrane oxygenation at the Simulation Training Centre.
- An overseas instructor teaching neonatal ventilation workshop at the Simulation Training Centre.
- Medical students get clinical exposure through participating in patient consultations.
- Some UK experts attending a commissioned training symposium visited the ambulance used for patient transport training in the Simulation Training Centre.
A Patient-centred and Family-friendly Hospital
The HKCH is committed to create a non-institutional home-like environment with friendly ambience to relieve the stress of child patients and families during their long treatment journey. From the colourful décor, diversified facilities to specially designed medical equipment, we put a great amount of thought to enhance the patient experience for better therapeutic outcomes.
The following are photo captions:
- In the Department of Radiology, top-notch imaging equipment is housed in examination suites of different themes such as circus, space and dinosaurs to alleviate children's fear for a smooth scan.
- The Patient Resource Centre provides a welcoming and relaxing environment to support the leisure, socialising, learning and psychological needs of patients and families.
- A plaque unveiling ceremony was held to thank the Chow Tai Fook Medical Foundation for its generous donation for establishing the Patient Resource Centre.
- Patient Resource Centre introduction
- Facilities in the Integrated Rehabilitation Centre combine training with games.
- The Family Overnight Rooms offer carers a comfortable place to recuperate.
Safeguarding the Community
Non-invasive Prenatal Testing Gives Expectant Mothers a Peace of Mind
HKCH provides HA's non-invasive prenatal testing service for Down syndrome, Edwards syndrome and Patau syndrome.
For pregnant women whose fetus is considered high risk in the first-tier obstetric screening, their blood samples are sent to HKCH for further testing. The test is 99% accurate, and it also prevents the risk of miscarriage due to invasive examinations.
The following is photo caption:
- The foetal DNA in the maternal plasma is analysed with a next generation sequencer. The test can tell the risk of fetuses having chromosomal disorders.
Saving Lives with Newborn Screening
HKCH supports the territory-wide newborn screening programme which covers all babies born in public hospitals, so they can receive timely treatment when problem is detected.
The programme now includes 26 inborn errors of metabolism, severe combined immune deficiency, spinal muscular atrophy, glucose-6-phosphate dehydrogenase deficiency and congenital hypothyroidism.
The following are photo captions:
- This baby was the first confirmed case picked up by the newborn screening programme for severe combined immune deficiency, characterised by weak immune system which may result in repeated infections and death. Appropriate protection was immediately given, and haematopoietic stem cell transplant was subsequently arranged as curative treatment.
- Under the newborn screening programme, babies' blood samples are collected with a dried blood spot card and sent to HKCH for testing.
Contributing to Hong Kong Genome Project
The government launched the Hong Kong Genome Project in 2021, covering cases with undiagnosed diseases, hereditary cancers, and those related to precision health.
It aims to benefit patients with more precise diagnoses and personalised treatment. At the same time, the data collected will be used to build a genome database of the local population to facilitate the clinical application of genomic medicine and scientific research. The HKCH is one of the partnering centres of the project to recruit suitable patients for receiving whole genome sequencing on a voluntary basis, and offer pre- and post-test counselling and clinical referral.
The following is a photo caption:
- A patient and his parents having genetic counselling, hoping to get a diagnosis through genome sequencing.
Building the Uncommon Disorders Database
HKCH is the referral centre for uncommon disorders. With the directive of the Policy Address, we have developed a database for individual uncommon disorders in phases to facilitate healthcare service planning and provide reference for diagnosis and treatment.
It makes use of big data and artificial intelligence with input from healthcare professionals in verification and analysis, and lists out the total patient number, age group, gender, and alive / death status of each disease within HA. More than 30 diseases are now covered in the database, and it will continue to expand with reference to the national catalogue of rare diseases.
Coverage of uncommon disorders database
- Metabolic diseases
- Neurological diseases
- Endocrine diseases
- More diseases to be added
Combating the Epidemic with All Our Might
In midst of the COVID-19 epidemic, everyone in the hospital worked tirelessly to fight against the fierce virus to protect patients and staff and maintain essential clinical services.
In addition to taking care of infected HKCH patients and treating critical children from different districts, we set up a government designated Children Community Vaccination Centre (CCVC) to vaccinate all eligible children in Hong Kong, helping to contain the epidemic and safeguard children from serious risks. HKCH also sent staff to serve in the Hong Kong Infection Control Centre and the Community Treatment Facility at AsiaWorld-Expo. To ease the burden of the public healthcare system, we shared the workload of other hospitals such as taking their other patient cases and supporting their nucleic acid testing and radiology services.
The following are photo captions:
- The CCVC provides all types of COVID-19 vaccines suitable for toddlers and children. By the end of 2023, over 70,000 doses had been administered.
- With concerted efforts of various departments, it only took 18 working days to open the CCVC at Tower B Lobby.
- The CCVC was decorated with cartoon signage to create a happy experience for children. They also got balloons and souvenirs after getting the jab.
- Mr Patrick Nip, Secretary for the Civil Service inspecting the vaccines preparation process.
- The Mainland COVID-19 medical expert delegation assisting Hong Kong in tackling the fifth wave of the epidemic exchanged views with HKCH clinicians about the management of critical patients.
A Place Full of Joy
Joyous Gatherings Spread Love and Care
From festive celebrations to every-day surprises, many activities are prepared for patients and their families to bring them happiness and blessings.
The following are photo captions:
- At the 2019 Christmas carnival, healthcare staff dressed up as movie characters to celebrate the festive season with hundreds of patients, family members and colleagues. What a fun day to remember!
- Participants were treated with an open-top bus ride along the Kai Tak waterfront.
- Patients delightfully immersed themselves in the beautiful music played by professional musicians who served as volunteers.
- Patients and families enjoyed a memorable summer afternoon with music and art-inspired performances and game booths brought by the Patient Resource Centre and community partners.
- Swimmer Siobhán Haughey and other Olympic athletes cheered on patients
A Happy Workplace
Different staff engagement activities are organised to foster communication, teamwork and sense of belonging. They also help to relieve stress and promote work-life balance.
The following are photo captions:
- Staff music group members form a bond through a shared passion for music, and put together performances to spread smiles and blessings in the hospital.
- The staff recreation room is equipped fitness equipment for colleagues to recharge their body and mind.
- The horticultural group allows colleagues to experience the joy of gardening and satisfaction of harvest. Through offering a helping hand to one another, they develop a closer relationship.
- Colleagues writing unique blessings in Chinese calligraphy to celebrate Lunar New Year.
Five Grateful Years and Counting
On the occasion of the hospital's 5th anniversary, an array of activities was held to celebrate our proud achievements and thank our dedicated staff.
The following are photo captions:
- 5th anniversary souvenirs given to staff.
- Guests celebrated the 5th anniversary at the annual dinner.
- 50 tables of staff from various departments enjoyed a fun night.