常有人问我,究竟医院发展进度如何。事实上,我们截至七月已开设了194张病床,临床服务亦相当齐全。以门诊为例,现时有多个专科进驻,而一些复杂病种(如脑肿瘤、骨骼发育不全、炎症性肠病和今期介绍的唇颚裂),更设固定跨专科会诊时段。以往病人覆诊要「走几科」,重复诉说病情。联合会诊免却病人舟车劳顿,整个团队亦可同步检查问症,面对面沟通,就治疗方案达成共识。看似「大阵象」和花时间,却具成本效益,对病人也最好。
同时,我们正密锣紧鼓筹备开展心脏科及心胸外科服务。医护团队和病人会分阶段由玛丽医院调迁,届时服务将更完善。
疫情期间,病人资源中心在极短时间内统筹七个非政府机构(儿童癌病基金、菲奥多拉基金会、香港红十字会医院学校、生命小战士会、愿望成真基金、智乐儿童游乐协会及麦当劳叔叔之家慈善基金)制作电视节目在病房播放,发挥创意、灵活性和合作精神,为病童提供不可或缺的心理社交支援。
衣食住行是同事关注的环节,我和大家一样著紧。期待以久的职员餐厅即将开业,希望带来更多方便。
医院行政总监李子良医生
因应2019 冠状病毒病疫情,本院暂停了一般亲友和义工探访。面对突如其来的转变,病童难免不适应,因此院方提供治疗之余,亦尽力关顾他们的心灵需要。
病人资源中心与七个非政府机构在三月底合作推出「童趣缤纷台」电视频道,为病童度身制作一系列精彩节目,逢星期一至五播放,内容包括消闲娱乐、停课不停学、防疫常识及情绪支援,病童只需安坐病床就能收看。
十一岁的贝贝分享:「最近义工们不能来病房陪我玩和聊天,真的很闷。不过现在可以在电视见到他们,又教我做手工和折纸,很开心呢!」
本院近月不时收到社会各界捐赠口罩及搓手液等物资,以支持我们抗疫。在装备供应紧张的挑战下,这些捐赠能给予及时支援,有助确保不同岗位的员工得到所需防护,更专注服务病童。善长心意,我们衷心感激。
5月12日为国际护士节,由于疫情关系,院内庆祝活动从简。医院行政总监及护理总经理和护士们合照,借此肯定及感谢各位护士在疫症期间时刻紧守岗位。作为抗疫的重要防线,护士们付出无私努力,并要兼顾日常护理工作和协助推展服务,贡献良多。
香港儿童医院启用至今年七月共开设194张病床,而以下临床服务已相继投入运作,为病童提供诊断、治疗及复康服务。
儿童及青少年科
外科服务
麻醉及全期手术医学科
病理学部
放射科
专职医疗
药剂部
唇颚裂属先天颜脸缺陷,会导致外观、进食、说话、听力和牙齿问题。香港儿童医院去年5 月起为唇颚裂病童提供一站式会诊,包括第一期跨部门综合治疗及早期第二期治疗。院方现时正跟进约700 名病童,并将逐步扩展服务至提供全面的第二期唇颚裂治疗。
负责统筹服务的小儿外科顾问医生赵式言指,跨专业团队能为病童提供全面治疗︰「病童颜脸结构随成长转变,衍生不同的复杂问题,需由多个专科合作,在最适当的时机进行相应治疗,循序渐进。」
赵式言医生指,综合会诊方便各专科共同商讨病情,作出一致决定。见证病童由婴儿慢慢长大,变得接受自己,与同学融洽相处,能燃点团队继续服务病童的热诚。
皓尧一出世便到香港儿童医院接受会诊,展开漫长的治疗旅程。他妈妈道:「虽然儿子注定要经历多次手术及留下疤痕,但我们会用爱去弥补缺陷。很感激医疗团队全方位支援,令我们更有信心陪伴他成长。」
唇裂病童出生约三个月便会接受首次重建手术,改善外观之余,亦能修补父母的心。皓尧爸爸忆述,之前因陌生人眼光而不敢带儿子外出。他明白手术必有疤痕,并不强求效果,但在术后揭开纱布一刻,不禁赞叹「完美无暇」。
这项手术其实难度非常高,要从肌肉、内膜及皮肤三层修补唇部皮瓣,同时替下陷的鼻子矫型,确保对称。团队更引入手术后的预防性激光治疗,令疤痕不显眼。
至于颚裂缝合手术则于一岁左右进行。如有需要,耳鼻喉科医生会同时切开鼓膜及植入引流导管,防止中耳炎。
婴儿接受首次手术前,需要长时间配戴塑型器。牙科及口腔颌面外科顾问医生黄永杰解释, 它能协助纠正唇鼻歪向一边的情况,提升手术效果。
患者约六岁后便要接受多次矫齿治疗,主要是为配合不同阶段的手术。「例如病童两边颚骨太近,我们会慢慢将上颚扩阔,以便日后进行颚骨修补手术;术后则会透过箍牙将牙齿移至植骨位置,防止植骨萎缩。」黄医生补充。
颚裂患者常因软颚及咽喉肌肉欠协调,出现咬字不正、鼻音过重和鼻漏气等问题,需由两岁开始接受言语治疗。在医院筹备阶段,言语治疗师姚霭欣和其他治疗师合力开发了全港首套粤语颚裂语音评估工具。她说:「本地的颚裂病童有独特的语音问题,这套工具能帮助我们提供更准确的评估及训练方向。」
急性白血病是儿童最常见的癌症。香港儿童医院负责诊治全医管局的儿童急性白血病个案,并提供全港唯一的儿童造血干细胞移植服务。在病理学部,一群血液学组的「侦探」每天穿梭化验室,争分夺秒化验血液及骨髓样本,揪出致病元凶,为病童带来希望。
本身负责带领血液学组的病理学部部门主管苏志钊医生表示:「当子女受疾病缠扰而不知原因,父母往往感到焦急和自责。我们提供快而准的化验报告,除了协助主治医生诊治,亦让父母的心可以安定下来。」
急性白血病病童的血液和骨髓能为其诊断、治疗、病情展望和监察提供重要线索。化验团队会利用各种科技, 包括在显微镜下观察细胞形态、进行染色体分析, 及透过先进仪器在治疗后追查癌细胞踪影。苏医生表示:「病童需要经常抽血, 加上血量较成人少, 因此我们特别选购了只需一毫升血便足够进行多重检测的仪器。」
由于不同类型的白血病治疗方法有异,医务化验师会运用先进的流式细胞仪分析病人的骨髓样本,透过辨别癌细胞的独特抗原, 确认急性白血病的种类, 医生就可制订最适切的治疗方案。它亦可计算出癌细胞残余量, 从而评估治疗成效及如何跟进。苏医生解释:「这部仪器非常高速和精密, 只需数分钟便可扫描成千上万个细胞。即使一万个细胞中只有一个癌细胞,亦能侦测出来。」
他认为医院的临床及化验室团队合力为病童诊治,犹如电影制作:「一部电影要成功, 除了男女主角, 亦需要出色的剧本、服装、摄影和剪接。病理科好比电影幕后人员,我们运用专业知识和经验提供高质素的化验报告,与主治医生紧密联络,一起拆解棘手病症,很有满足感。」
虽然经常埋首化验室,但苏医生一直心系病童:「每次发现病童确诊白血病,想到他们整个家庭都要与疾病战斗,我都会很伤感,并提醒自己做好本份,否则是对不起病人。」
人体骨髓中的造血干细胞负责产生全身的血液细胞。急性白血病患者却因癌细胞或高强度治疗破坏了干细胞的造血功能。虽然大部分患者可透过化疗或标靶治疗痊愈, 但是有些病童仍要接受造血干细胞移植,才可正常造血。香港儿童医院提供全港唯一儿童造血干细胞移植服务, 并配备一间干细胞移植化验室作支援。
工作人员会在无菌空间小心翼翼地处理采集得来的造血干细胞, 包括清除会引致移植后排斥及严重并发症的成份。样本亦会进行细菌测试,确保安全。
若干细胞并非即时使用,会暂存在零下190 ℃ 的储存缸里,直至病童需要移植时才解冻使用。
储存缸中的液态氮为造血干细胞提供超低温保质环境,以备在适当时候注输予病童。
疫情为大家的日常生活以至全球政治经济环境带来转变和不确定性,感到焦虑不安实属人之常情。这里跟大家分享一些面对疫情时保持心理健康的贴士:
愿大家身心平安!
撰文: 临床心理学家潘秀群博士 插图: 病人服务助理蒋承浚
即使工作繁忙,身边仍有很多美好的事物为生活注入正能量。诚邀香港儿童医院同事们用镜头记录「感恩一刻」与大家分享,一经选中便有机会在《香港儿童医院通讯》刊登,详情如下:
医院行政总监李子良医生
麻醉及全期手术医学科副顾问医生郭蕙漩医生
行政事务总经理郭慧敏女士
专职医疗行政经理陈娜智女士
护理部高级护士长冯静雅女士
高级人力资源经理吴海宁女士
高级行政主任(对外关系及筹募)杜蕴慧女士
一级行政主任(对外关系及筹募)董洁欣女士
二级行政主任(对外关系及筹募)林瑞敏女士
二级行政主任(对外关系及筹募)吴文诺女士
二级行政主任(对外关系及筹募)邱雅锜女士
© 2020 医院管理局版权所有
如对本通讯有任何意见,欢迎电邮至 enquiry_hkch@ha.org.hk
网上版请浏览 www.ha.org.hk/hkch
I am often asked about our development progress. In fact, we will have up to 194 beds up to July and our services are quite comprehensive. Taking the outpatient clinic as an example, many specialties are now providing service, and there are multidisciplinary consultation sessions for some complex diseases, such as brain tumors, skeletal dysplasia, inflammatory bowel diseases and cleft lip / palate. This arrangement saves patients’ hassles and effectively enables team members to discuss diagnosis and treatment plans together. It may seem an extravagant use of manpower and time, but is indeed cost effective in the long run.
Meanwhile, our new cardiology and cardiothoracic surgery services are already in the pipeline. Manpower and patients will be translocated from the Queen Mary Hospital gradually.
Under the COVID-19 pandemic, the Patient Resource Centre has quickly pulled our NGOs partners together to launch an in-house TV channel for patients to stay connected. This is a good example of using innovation, flexibility and concerted effort to provide psychosocial support, which is an essential part of our service.
I am also pleased to announce that the long awaited staff canteen will soon be in service. I hope colleagues would find it more convenient.
Dr Lee Tsz-leung, Hospital Chief Executive
In response to the COVID-19 outbreak, visiting of visitors and volunteers has been suspended in public hospitals. At HKCH, alternative ways are taken to support patients to go through this difficult time.
The Patient Resource Centre has lined up seven NGOs to launch the “Children’s TV Channel” in late March. Inpatients can tune-in on weekdays in their bed to enjoy a series of tailor-made programmes which cover entertainment, learning, infection control knowledge and emotional support.
11-year old Pui-pui shared, “I get bored as the volunteers cannot come these days. We used to play and chat. But now I can see their faces on TV. I am happy that we can do artwork and origami together again!”
We have been receiving donated items such as masks and hand sanitizers for fighting against the pandemic. Under the global shortage, these timely gifts really help us ensure appropriate protection for our staff. A big thank you to all donors!
This year’s International Nurses Day was celebrated in a simple but meaningful manner. On 12 May, the Hospital Chief Executive and General Manager (Nursing) took a photo with a group of nurses as a recognition of all nurses’ contribution as gatekeepers against institutional outbreak of diseases, as well as their dedication in providing quality healthcare and supporting service expansions.
Since our opening, the following clinical services have gradually commenced to provide children with diagnosis, treatment and rehabilitation; and 194 beds will be in use as of this July.
Paediatrics & Adolescent Medicine
Surgical Services
Anaesthesiology & Perioperative Medicine
Pathology
Radiology
Allied Health
Pharmacy
Cleft lip and palate is a congenital deformity which can cause problems to appearance, eating, speaking, hearing and dentition. The HKCH cleft team has begun one-stop outpatient services since May 2019, providing multidisciplinary primary cleft care and early secondary treatments. About 700 children are currently managed under HKCH, and secondary cleft services will expand in due course.
Consultant in Paediatric Surgery Dr Nicholas Chao who coordinates the service explained the merits of the multidisciplinary care approach,“As children grow, their facial structure changes and different problems emerge. It’s important for us to work together to give the right treatments at the best timing during the long journey.
Dr Nicholas Chao said that joint consultation facilitates communication in the team. They feel motivated seeing children thriving in society and accepting themselves after treatments.
Little Ho-yiu came to the HKCH cleft clinic days after birth. His mom shared, “Though our son would undergo many surgeries and have scars, our love shall overcome. I’m grateful for the cleft team’s support which has prepared us to face the challenges ahead.”
Children with cleft lip normally have their first reconstructive surgery at around three months. Ho-yiu’s father recalled keeping him home before the surgery to avoid strangers’ look. “Honestly, I didn’t have high hopes in the surgery. But to my surprise, when the gauze was removed, the closure looked really flawless!”
This surgery is in fact highly technical. It involves repairing the lip defect and the nose in layers with meticulously designed tissue flaps to achieve a symmetrical alignment. The team has also introduced prophylactic laser treatment to reduce scars after surgery in collaboration with Paediatric Dermatology.
For palate repair surgery, it is usually done at one year old. If necessary, ENT surgeons will simultaneously perform grommet insertions to prevent associated recurrent ear infection.
Before undergoing their first surgery, infants have to wear a moulding device daily. Consultant in Dentistry & Maxillofacial Surgery Dr Ricky Wong explained that it is to reduce the severity of the deformity in order to improve surgical outcome.
Multiple orthodontic treatments would be arranged for patients after they reach six. “They are mainly to complement surgery at different stages. For example, we may need to widen the maxillary arch to prepare for the alveolar bone grafting surgery, after which we may apply braces to move the dental roots into the bone-grafted area to prevent bone resorption.” Dr Wong added.
For cleft palate patients, the dysfunction of soft palate and pharyngeal wall may cause articulation errors and nasal sounding speech with nasal emission which warrant speech therapy from the age of two. Speech Therapist Yoyo Yiu, together with other therapists, developed Hong Kong’s first Cantonese cleft speech assessment tool during HKCH’s commissioning phase. “Local children have their unique speech problems. This dedicated tool helps us provide more accurate assessment and training direction.”
Acute leukemia is the top childhood cancer. In the Hospital Authority, HKCH is the only centre for treating paediatric acute leukaemia and performing paediatric haemopoietic stem cell transplantation. Besides frontline doctors, the“detectives” in the Division of Haematology under the Department of Pathology work relentlessly on blood and bone marrow samples to identify the culprit behind the diseases.
“When children get very sick without a reason, parents often feel anxious and guilty. Our timely and accurate laboratory reports help attending doctors to confirm diagnosis and formulate treatment plans. Telling parents what is going wrong also puts their mind at rest,” says Dr Jason So, Chief of Service (Pathology) who also heads the Division of Haematology.
The blood and bone marrow of a child suffering from acute leukaemia provide important clues for diagnosis, treatment, prognosis and monitoring after treatment. In the laboratory, team members employ different technologies, from morphology examination under the microscope, chromosome analysis, to the use of advanced equipment to detect traces of cancer after treatment. “As our sick kids require frequent blood-taking and their blood volume is small, we have selected testing platform which requires as little as 1 ml of blood for multiple testing,” Dr So says.
With the help of an advanced flow cytometer, medical technologists are able to classify the exact type of acute leukaemia that is harming the patient, so that doctors can prescribe the right therapy. It is also used for counting the quantity of residual leukaemic cells to evaluate treatment effectiveness and guide further management. “This machine can scan hundreds and thousands of cells in minutes. Even if there is only one cancer cell among 10,000 cells, it can still spot it,” Dr So says.
Dr So described the collective effort of the clinical and laboratory teams in treating patients as movie-making, “A successful movie needs great actors as well as great script, costume design, cinematography and editing. We at Pathology are like those working behind the scene. I find it rewarding to be able to use our professional knowledge and experience to produce quality laboratory reports and crack difficult problems in our patients with the clinical team.”
Although Dr So spends most of his time in the laboratory, he always keeps patients in his mind. “Whenever a child is diagnosed with leukaemia, I feel sorry knowing that another family has to suffer, and that always reminds me to do my best for them.”
The haemopoietic stem cells inside our bone marrow produce all types of blood cells. In acute leukaemias, these cells are either suppressed by cancer cells or damaged by the intensive treatment. While most leukaemias are curable with chemotherapy or targeted therapy, some patients may eventually require haematopoietic stem cell transplantation (HSCT). HKCH is equipped with a stem cell laboratory to support the territory’s only paediatric HSCT service.
In the laboratory, staff carefully process the harvested haemopoietic stem cells, such as removing components that may cause rejection and other serious complications after transplantation. Microbiological culture is also performed to ensure safety.
Stem cells that are not used immediately are stored in a cryogenic container at -190℃ . They will be thawed for use when a patient requires transplantation later.
Haemopoietic stem cells are stored in cryogenic containers filled with liquid nitrogen to keep them in good condition.
The COVID-19 pandemic is causing changes and uncertainties to people’s daily lives and the global political and economic landscape. It is understandable to feel unsettled. Here we would like to share some tips for maintaining psychological health during this difficult time:
May you be well!
Text: Dr Connie Poon, Clinical Psychologist Illustration: Thomas Chiang, Patient Care Assistant
There are many wonderful things in life that make us happy and motivated. Why not capture a moment of “gratitude” with your camera and share with us? All HKCH colleagues are welcome to participate. Your photo may get published in this Newsletter!
Dr Lee Tsz-leung, Hospital Chief Executive
Dr Vansie Kwok, Associate Consultant(Anaesthesiology and Perioperative Medicine)
Ms Miscelle Kwok,General Manager (Administrative Services)
Ms Nerita Chan, Manager (Allied Health)
Ms May Fung,Senior Nursing Officer (Nursing Services Division)
Ms Elaine Ng, Senior Human Resources Manager
Ms Vivian To, SEO (External Relations & Donation Management), HKCH
Ms Haze Tung, EOI (External Relations & Donation Management), HKCH
Ms Sarah Lam, EOII (External Relations & Donation Management), HKCH
Ms Mandy Ng, EOII (External Relations & Donation Management), HKCH
Ms Karis Yau, EOII (External Relations & Donation Management), HKCH
Copyright © 2020 Hospital Authority
Please send comments and suggestions to enquiry_hkch@ha.org.hk
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