香港儿童医院通讯 第八期 （2018年4月）

院长的话

新开始 新希望

我出任香港儿童医院行政总监刚好两年，过去几个月心情比较激动。筹备经年的医院落成，先头部队相继入伙，大家终于拥有属于自己的实体医院。宽敞的空间、春意盎然的花园加上墙上活泼的小动物都令上班更添动力。分散各处的同事可以聚在一起，亦有助加强归属感和沟通，事半功倍。

两年来我不断向各界介绍儿童医院的理念和服务，现在置身其中，顿觉这一切不再是纸上谈兵，而是真的要发生了！最近来参观的人士都一致赞赏我们的环境设施媲美海外的儿童医院。我衷心感谢所有参与设计及工程的团队，合力为香港建造了一间以病童为本、家庭友善的医院。对于从事儿科的医护人员来说，这实在是多年来的梦想成真！

儿童医院今年第四季就会启用，社会对我们的关注和期望与日俱增。我不认为这些是压力，反而提醒我们要多听意见，提供更优质的临床服务，努力发展科研与培训。

每位儿童医院的同事都是不可或缺的拼图，担当缔造历史的重任，在这个全新的环境开创前所未有的服务模式，改善儿科服务。即使过程有多艰辛，只要铭记所做的一切都是为著病童的福祉，将来回首也必是很有意思的一段经历。希望大家将医院视作第二个家，朝著共同目标进发，加油！

香港儿童医院行政总监李子良医生

香港儿童医院正式成立

经过四年多的建造工程，医管局于2月1日正式从建筑署接收香港儿童医院大楼，并在大堂举行了一个简单的移交仪式。九龙中医院联网总监卢志远医生感谢各政府部门协助，令医院顺利落成。他说：「儿童医院是九龙中联网一员，但有著其独特地位，负责统筹全港公立儿科服务。专业的医护人员在完善硬件配套下，可为病童提供更优质的服务。」

政府其后刊宪，将香港儿童医院加入为《医院管理局条例》下的订明医院，标志香港儿童医院正式成立。

儿童医院筹划组同事亦于三月下旬搬家，从伊利沙伯医院护士宿舍及油麻地分科诊所的临时办公室，进驻启德的新医院。同事们会继续努力不懈筹备服务及运作细节、采购医疗仪器、测试系统、招聘人手及安排培训等，为开院做好准备。

紧密沟通携手助病童

为使服务更切合病童及家庭的需要，香港儿童医院一直与各持份者保持联系。最近院方出席了立法会、九龙城区议会及医管局九龙区域咨询委员会会议，讲解筹划工作最新进展，并回应其就临床服务开展安排、人手招聘、交通配套等议题的关注；另外亦安排了数场参观，促进交流，精益求精。

• 食物及衞生局局长陈肇始教授及副局长徐德义医生到访。
• 医院管理局大会成员前来参观。
• 向传媒介绍病房设计。
• 立法会议员实地视察，对各项设施感到满意。
• 医院管理局主席梁智仁教授、行政总裁梁栢贤医生连同各总部及联网总监于中央复康花园留影。
• 李子良医生向九龙城区议会介绍医院服务，议员均表达希望当局加强来往医院的公共交通配套，方便市民求诊及探病。

香港儿童医院今年第四季启用

香港儿童医院作为第三层转介中心，将集中处理严重、复杂、不常见，及需要跨专科治理的儿科病症，为全港初生至18岁的有需要病童提供诊断、治疗及复康，并集中专家就儿科及遗传疾病加强研究及培训。

为确保病人安全、服务质素及运作畅顺，儿童医院将分阶段投入服务，启用首阶段由今年第四季至2019年第二季，期间会先开设专科门诊，住院服务随后开展。于首阶段投入服务的临床单位包括肿瘤科、肾科、心脏科及心胸外科、小儿外科、儿童深切治疗部、新生儿深切治疗部、麻醉科、放射科及病理学部等。

医院设计以「病童为本．家庭友善」为目标，让患有重病及长期住院的病童及其家人在经历各种检查和治疗时可减低恐惧及焦虑，改善病人体验。现在为大家介绍一些特色「景点」！

• 甫进大堂就能感受一室阳光，还有大树、彩云和飞鸟迎接。
• 情况稳定的病童可走出病房，到花园呼吸新鲜空气、进行复康活动、园艺治疗和欣赏表演。
• 病房色彩缤纷，富家居亲切感，更有活动空间让病童集体用餐和玩游戏；家长可在病床边的折床留宿，全天候陪伴照顾。
• 八只可爱动物引领病童到相关楼层，增添趣味。
• 在专科门诊等候时可欣赏海滨景致。

医院的幕后英雄

说起儿科医护人员，一般人最直接会想起医生和护士。其实整个诊断、治疗及复康的过程中，还有一班虽不显眼但无比重要的专业人员，默默地陪伴病童走过崎岖的抗病旅途。他们怀著一颗爱心加入香港儿童医院，现时游走于不同医院装备自己，并参与筹划服务运作，希望尽力为病童提供最好的照顾。

一个样本拯救一条生命

医务化验师　杨崇恩

化验师的工作可能给人沉闷刻板的印象，但杨崇恩对加入儿童医院却充满期盼。她如数家珍地说：「在显微镜下，小朋友的化验样本千变万化，今次覆诊与上一次可以是两码子的事。」

对杨崇恩来说，化验结果不只是数字，而是牵连一家人的幸福。「一些遗传病如及早发现，尽快开始治疗，是可以控制病情，有机会挽回小朋友的身体机能和智力发展，亦有助父母考虑是否再生育。」

她曾遇上一个患先天性代谢病的病童个案，其母亲再次怀孕，整个化验团队都为这家人忧心。「虽然素未谋面，我却完全代入了他们的心情。由在母体开始，至婴儿出生长大，每次化验其样本时，我都提醒自己要更快更敏感，从一大堆数据里查找是否有异样。」最终虽证实第二名小孩亦罹患该症，幸好及早介入，并无影响发展。「在儿童医院相信有更多机会接触这些罕见病种、尖端科技和研究，我感到很兴奋。」

做好准备　扫描诊断更顺利

放射师　刘雪韵

刘雪韵从事放射工作十年，但为小童做扫描检查的经验却不多。她不违言以往的经历都是「痛苦」的，要同时面对哭闹小朋友及紧张的父母，真有点手足无措。那为甚么还要来儿童医院工作？她不假思索道︰「这里一切以儿童为本，让我可投放时间和病童及家人沟通。」她表示若扫描过程顺利，可提升影像准确度，助医生作出诊断。

她现时于两间医院受训，学习针对不同年龄、病种及身体部位的扫描技巧。「因为儿童身体不断发展，如一岁和两岁幼儿的脑部结构已有分别，比成年人个案需掌握的知识更多更广，极具挑战。」

刘雪韵亦担起「设计师」一职，和同事一起将儿童医院的磁力共振室布置成一个玩乐空间，并添置模拟器。「我们希望让病童在一个安全有趣的环境下预习一次扫描流程，到正式检查时就不会太不安及紧张，可尽快得到最适切的治疗。」

心系儿童　携手同行

职业治疗师　杨丽菁

杨丽菁多年来处理过不同专科的个案，但由开拓大埔那打素医院的儿童职业治疗服务，到成为首批加入儿童医院的职业治疗师，一路走来，始终钟情儿科。她喜欢挑战复杂个案，每当病人进展未如理想，下了班都会翻看参考资料，翌日再尝试不同方法；放假时亦爱逛玩具店为病童选购训练玩具。

杨丽菁曾照顾一位患有脑癌的女孩，她因视力受损缺乏自信。「我们由兴趣聊起，又跟她做手工及自理训练，一步步建立互信后，她变得积极投入治疗，不再依赖。」期间杨丽菁发现女孩的表现未如一般脑癌康复者，怀疑她同时有学习障碍，于是与临床团队讨论，最终确诊并成功转介她到特殊学校。「及后电话跟进，得知她很享受现时的生活，母亲也感激我们的细心安排。」她深信透过团队合作，可更全面支援病童的复康需要，提升生活质素，希望和不同职系的同事探索最佳的综合服务模式。

员工培训及招聘

• 参与医管局2018/19驻院受训医生招聘讲座
• 护理同事接受海外培训后在论坛上分享得著
• 邀请海外专家进行儿童超声波、电脑扫描及磁力共振培训

2017年10月至2018年3月新入职及晋升员工

编辑委员会

主席

香港儿童医院行政总监李子良医生

成员

香港儿童医院麻醉科顾问医生袁文英医生

香港儿童医院儿科专科驻院医生陈宇轩医生

香港儿童医院总护士长陈宝妍女士

香港儿童医院高级药剂师潘文康先生

医管局总办事处机构传讯经理舒瑞珍女士

编辑

香港儿童医院总院务主任郭慧敏女士

香港儿童医院高级行政主任（对外关系及筹募）杜蕴慧女士

香港儿童医院一级行政主任（对外关系及筹募）董洁欣女士

香港儿童医院二级行政主任（对外关系及筹募）林瑞敏女士

© 2018 医院管理局版权所有

如对本通讯有任何意见，欢迎电邮至 enquiry_hkch@ha.org.hk

网上版请浏览 www.ha.org.hk/hkch

Hong Kong Children's Hospital Newsletter Issue 8 (April 2018)

Message from HCE

New start, new hope

It has been two years since I took up the role as HKCH’s Hospital Chief Executive. The past few months have been quite emotional for me. After years of meticulous planning, construction of the hospital complex had completed. Colleagues can finally gather under one roof, which should bring about stronger sense of belonging, better communication and higher efficiency. The spacious buildings, scenic gardens and cute animals on the wall also make each work day more enjoyable.

Over the past two years, I have been introducing the hospital’s concepts and services to numerous stakeholders. Now, I have a strong feeling that this is really happening. Our world-class facilities are highly complimented by those who came to visit recently. I am deeply grateful for everyone involved in this extraordinary project. Together, we have built a children-centred and family-friendly hospital for Hong Kong. It’s a dream come true to all paediatricians.

HKCH is scheduled to open from the fourth quarter of 2018. With growing attention and expectations, we should view different opinions and suggestions as motivation to keep enhancing our clinical services, research and training efforts.

To my fellow colleagues, you are all history-makers. Each of you is an important piece in the puzzle of improving the paediatric service for our children. The experience may be tough, but when we look back years later, it would be worthwhile and meaningful. I do wish that you will call HKCH your second home, and let’s join hands in reaching our common goal!

Dr Lee Tsz-leung, HKCH Hospital Chief Executive

HKCH officially established

After over four years of construction, the HKCH complex was officially handed over to HA by the Architectural Services Department (ArchSD) on 1 February. Dr Albert Lo, Cluster Chief Executive of the Kowloon Central Cluster said during the handover ceremony, “Being a member of the KCC, the HKCH will also perform its unique role in coordinating the overall public paediatric service. With the help of the new infrastructure, our healthcare professionals will be able to provide sick children with better service.”

An order to amend the Hospital Authority Ordinance was published in the Gazette by the Government right after to add HKCH to the list of prescribed HA hospitals, marking the official establishment of the HKCH.

Meanwhile, the HKCH commissioning team has moved to the new hospital site in Kai Tak from the temporary offices in the Queen Elizabeth Hospital Nurses Quarters and the Yau Ma Tei Specialist Clinic. Colleagues are now working in full gear in their respective professional area, including services and operations planning, procurement, systems testing, recruitment and training, to prepare for the hospital’s opening.

Enhancing communication for the wellbeing of sick children

The HKCH has been maintaining a close connection with different stakeholders. We recently attended meetings of the Legislative Council, the Kowloon City District Council and the HA Kowloon Regional Advisory Committee to update the latest progress and respond to concerns on issues like service commencement arrangements, recruitment, ad transport accessibility. A series of site visits were also arranged to foster exchange.

• Visit of Prof. Sophia Chan, Secretary for Food and Health, and Dr Chui Tak-yi, Under Secretary for Food and Health.
• Visit of Hospital Authority Board Members.
• Media is given a tour of the ward.
• Legislative Council Members pay a visit to HKCH and acclaim its designs and facilities.
• HA Chairman Prof. John Leong and Chief Executive Dr Leung Pak-yin, together with some HA Directors and Cluster Chief Executives after taking a stroll in the Central Rehabilitation Garden.
• While being briefed about HKCH’s service, Members of the Kowloon City District Council express that there is an imminent need to strengthen the public transport network.

HKCH to open by phases in Q4 2018

HKCH will serve as the tertiary referral centre for complex, serious and uncommon paediatric cases requiring multidisciplinary management, providing diagnosis, treatment and rehabilitation for needy patients from birth to 18 years of age territory-wide. It will also pool together expertise to strengthen research and training regarding paediatric and genetic diseases.

HKCH will commence service by phases to ensure patient safety, service quality and operational smoothness. The first phase of service commencement spans from Q4 2018 to Q2 2019. It will begin with specialist outpatient service, followed by the gradual opening of inpatient service.

The hospital has adopted a children-centred and family-friendly design to create a better patient experience. Let’s have a look at special features.

• The lobby welcomes visitors with abundant sunlight and nature-inspired décor.
• Clinical condition permitting, children can have a breath of fresh air in the garden while taking part in rehab activities, horticulture therapy and performances.
• Colourful decals create a home-like ambience in the ward. Children can dine and play in the communal activity space, while foldable beds in the cubicle allow parents to take care of their loved ones overnight.
• Eight cute animals lead children to respective floors, adding fun to the treatment journey.
• One can enjoy the relaxing sea view while waiting at the specialist outpatient clinic.

Heroes Behind the Scenes

Doctors and nurses are usually seen as the most direct carers to sick children in a hospital, but outside the spotlight, there are other healthcare professionals who are equally crucial in the patient journey. With love and passion, these individuals have joined HKCH and are participating in training and service planning. They are dedicated to provide the best care to children during their fight against diseases.

One sample, one life

Sue Yeung, Medical Technologist

The job of a Medical Technologist may be seen as monotonous, but Sue Yeung has joined HKCH with great expectations. “The laboratory sample of a child can be ever-changing under the microscope, and varies profoundly from one follow-up investigation to another,” she said.

For Sue, a laboratory result is much more that numbers. It can affect the wellbeing of the whole family. “If genetic disorders could be detected earlier, the child’s condition could be better managed. It could also assist parents in planning for the next pregnancy.”

Sue once encountered a case with inborn errors of metabolism, which the mother was pregnant again. Her team was all worried for the family. “I could fully stand their shoes though we had never met. From the mother’s pregnancy to different development stages of the infant, I promoted myself to work quickly on their samples and look carefully for any abnormality from a bunch of data.” The infant was eventually diagnosed with the same disorder. Fortunately, their early intervention has safeguarded its future development. She said, “I am excited and believe that HKCH will offer me with more opportunities in facing these rare diseases, cutting-edge technologies and research!”

Getting ready for a sharper image

Mong Lau, Radiographer

Although Mong Lau has been a radiographer for ten years, she did not have much experience in performing imaging for children, and almost every occasion was a nightmare. “It was so hard managing crying kids and nervous parents at the same time,” she said. It seems counterintuitive that she has chosen to join the HKCH. She explained, “This children-centred hospital would allow me to devote more time to communicate with patients and their family. When the scanning process is smooth, we can produce better images which facilitate doctors in making accurate diagnosis.”

Mong is now receiving training in two different hospitals and acquiring practical skills on scanning children of different age groups and illnesses. “Children grow so rapidly. For example, the brain structure of an infant can be very different than that of a toddler. Extra knowledge is needed and this is very challenging.”

Mong has also taken up the role as an “interior designer” for the MRI suite equipped with a simulator. “By arranging trials in a playful and safe environment, we wish to ease the children’s anxiety during the real scan. It should help to reach diagnosis more easily so that appropriate treatment can begin sooner,” Mong affirmed.

Putting children’s needs close to heart

Hellen Yang, Occupational Therapist

From developing the paediatric occupational therapy service in AHNH to becoming one of the first occupational therapists in HKCH, Hellen Yang has wholeheartedly devoted to paediatric care. After work, she spends much time looking up reference materials to tackle challenging cases. During weekends, you can often find her in toy stores shopping for training toys.

She shared the story of young girl under her care. Affected by brain cancer with compromised eye sight, the girl had low self-esteem. “I tried to open her heart by talking about her hobbies, and then did some therapeutic arts and crafts. As trust gradually built, she became more proactive in treatment.” Hellen suspected that the girl had underlying learning disorder which prompted her to arrange assessment and discussion with the clinical team. “We arranged a special school placement for her at last. Hearing her cheerful voice during phone follow-up was such an encouragement. Her mother was also grateful for our effort.” Hellen believes that an integrated approach can provide sick children with the best rehabilitation support and promote quality of life.

Staff Training and Recruitment

• Joining a career talk for the 2018/19 HA Resident Training Programme
• Sharing forum of overseas corporate scholarship programme
• Commissioned training on paediatric ultrasonography, CT and MRI imaging

Newly Recruited and Promoted Staff from October 2017 to March 2018

EDITORIAL BOARD

Chairperson

Dr Lee Tsz-leung, Hospital Chief Executive, HKCH

Members

Dr Vivian Yuen, Consultant (Anaesthesia), HKCH

Dr Eugene Chan, Resident Specialist (Paediatrics), HKCH

Ms Vivian Chan, Chief Nursing Officer, HKCH

Mr Freddie Poon, Senior Pharmacist, HKCH

Ms Linda Shu, Manager (Corp Comm), HAHO

Editors

Ms Miscelle Kwok, Chief Hospital Administrator, HKCH

Ms Vivian To, SEO (External Relations & Donation Management), HKCH

Ms Haze Tung, EOI (External Relations & Donation Management), HKCH

Ms Sarah Lam, EOII (External Relations & Donation Management), HKCH

Copyright © 2018 Hospital Authority

Please send comments and suggestions to enquiry_hkch@ha.org.hk

Read the Hong Kong Children's Hospital Newsletter online at www.ha.org.hk/hkch