香港儿童医院将按照计划，如期于今年第四季开院。一直以来，我都强调「病人安全」是我们筹划服务开展的大前提，必须谨慎部署，按部就班。因此，医院启用初期会首先接收肿瘤科及肾科专科门诊的稳定覆诊个案，目的是确保所有运作环节稳妥配合，能为病童提供高质素的服务以及方便、流畅的医疗体验。
病童来看病看似简单，但整个过程由交通、登记、分流、诊症、抽血、运送、化验、放射检查、收费、取药至预约下次诊期等步骤，当中涉及多个电脑系统，及不同部门前线与后勤人员的沟通。我们最近举行了演习，模拟病人覆诊情况，从而检讨有何细节需要改善，同时评估风险，制订应变措施。
这一切准备工作，都是为了明年引入更多专科，推展住院、日间、手术及深切治疗等服务打好基础。相比运作一个专科门诊，届时牵涉的流程将会更加复杂，人力物力要求更高，并要做好由其他医院调迁服务和医护团队的涵接，肯定挑战重重。专科门诊启用在即，全院上下却已为下一个目标奋战，没有一刻松懈。
在此我要感谢医管局总部及各联网的支持协助。祝愿开院万事顺利，为著病童我们必定全力以赴。
香港儿童医院行政总监李子良医生
香港儿童医院将于今年第四季开始分阶段启用。日后公立儿科服务将以全新轴辐模式运作，香港儿童医院作为第三层专科转介中心，将集中处理严重、复杂及不常见的儿科病症；至于地区医院儿科部门则主要负责第二层、紧急及社区护理服务，两者相互配合，建立一个协调和连贯的儿科服务网络。
香港儿童医院不设急症室或普通科门诊，所有病童须经公立医院或私家医生转介。医生会根据临床指引，因应病童当前情况转介他们到最合适的地方治理。
香港儿童医院启用初期会首先开设儿童肿瘤科及儿童肾科的专科门诊，而病理科、放射科及药剂部等亦会同步投入运作，以配合病童的诊断及治疗需要。
首批前来诊治的病童分别来自玛丽医院与威尔斯亲王医院的儿童肿瘤科，及玛嘉烈医院的儿童肾科，均为情况稳定的覆诊个案。医生现正进行筛选，并向合适的病童及家长解释转院覆诊安排。
至于住院及日间服务将于2019年内陆续开始提供，包括儿童肾科、儿童深切治疗部、儿童肿瘤科、新生儿深切治疗部、小儿外科、唇颚裂外科手术、心脏科及心胸外科。
新的服务模式能顺利推行，有赖各持份者的充分理解和配合。为此，院方会继续加强内部沟通及对外宣传。
香港儿童医院专科门诊将于今年第四季率先投入服务。医护人员正陆续通知首批病人有关覆诊安排。究竟前来覆诊要去哪些地方？有甚么要注意？现在就让我们一步一步讲解吧！
1. 于B座地下缴费处登记及付款（请出示预约纸及身份证明文件，如香港出世纸或香港身份证）
2. 乘电梯到一楼专科门诊接受发烧及传染病筛查
3. 到检查室接受评估（如度高、磅重、量血压）
4. 到诊症室见医生
5. 到专科门诊接待处预约下次诊症
6. 如有需要再进行以下程序
6A. 到抽血室抽血
6B. 乘电梯到二楼放射科接受影像检查（如磁力共振、电脑扫描等）
6C. 接受专职医疗服务，如见营养师（须另外付费）
6D. 护理指导 / 疾病管理讲座
如医生处方了药物
7. 到B座地下缴费处支付药费
8. 到旁边药剂部递交药单及等候领取药物（如有需要，药剂师会提供药物教育）
如病童就诊当日患传染性疾病（如上呼吸道感染、呕吐、发烧、皮疹、水痘等），家长应通知专科门诊另约诊症时间，详情请参阅预约纸或向诊所职员查询。
先天性代谢病初期未必有明显病征，却可影响各种身体机能，造成智力受损及器官衰竭等严重后果。好消息是现在透过基因化验科技便可筛检出有问题婴儿，在症状出现前及早确诊和开始治疗。
香港儿童医院将支援政府「初生婴儿代谢病筛查计划」的化验工作，及跟进所有怀疑和确诊个案。另外，院方正为「T21产前检测服务」加紧准备，以配合医管局为孕妇提供的第二层胎儿唐氏综合症筛查。
政府2015年推出初生婴儿代谢病筛查先导计划，由医管局与衞生署一起执行。由于计划取得成效，当局决定将其恒常化，现时于伊利沙伯医院、玛丽医院及威尔斯亲王医院提供，会逐步推展至八间公立医院出生的所有婴儿，涵盖24种代谢病，如枫糖尿病、苯丙酮尿症等。
负责统筹该服务的医管局总行政经理（医疗成效及科技管理）林洁宜医生表示︰「当初专家小组是根据四项准则，决定将哪些病种列入计划中，包括是否能够辨识、临床上对患者有重要影响、有治疗方法，和及早治疗会有良好成效。病童一般可透过调整饮食及药物治疗控制病情，健康成长。」
林医生指出，时间性对于代谢病筛查极为关键。团队须于新生婴儿吃奶满24小时后抽取血液样本进行化验分析，以赶及出生后的14日内转介异常个案给专科医生评估跟进，相当紧逼。要达到目标，全靠产科、运送、化验、资讯科技，及儿科等单位的无缝配合。
她强调：「服务一开展了便绝不能中断。因此我们要求化验室遇上连续三天假期亦要提供服务，亦配置了后备仪器和制定应急计划。」
先导计划筛查了15,100名婴儿，当中九名最终确诊代谢病。「正因为个案数量不多，将这些病人集中在香港儿童医院跟进，便有助累积临床经验及培训人才。」
另外，医管局将引入T21无创性胎儿染色体检测服务，应用于第二层唐氏综合症筛查，可避免抽羊水等入侵性程序，减低对胎儿的风险。林医生说︰「产科部门会筛选高危孕妇接受T21检测，将其血液样本送往香港儿童医院化验。预计每年要处理的个案多达3,000宗，涉及十分庞大的数据量，新医院的兴建正好提供空间容纳大型资讯系统。」
为筹备2019年第一季开展服务，院方购置了次世代定序仪，及聘用首位生物信息学家，长远有助发展各种遗传病的基因检测及诊断。
林洁宜医生指统筹这两项服务的最大挑战是协调不同部门，确保运作畅顺。她形容有如将婴儿照顾得健康活泼，现在是时候交给香港儿童医院继续养育。
香港儿童医院将照顾来自全港不同地区的病童，交通便利尤为重要。现时有三条公共交通路线可直达本院正门，预计今年第四季将再增设更多公共交通路线以配合医院启用。院方会继续与运输署、区议会及其他相关部门紧密联系，希望加强交通网络配套。
目前直达医院的公共交通路线 |
邻近港铁站 |
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专线小巴86号 |
九龙湾德福花园来往启德邮轮码头 |
九龙湾站A出口 |
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城巴22号 |
九龙塘又一城来往启德邮轮码头 |
九龙塘站 |
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九巴5R号 |
观塘apm来往启德邮轮码头 |
观塘站A2出口 / 牛头角站A出口 |
为使医院网站更切合病童及家长需要，我们最近更新了网页设计，添加丰富内容，除介绍医疗服务资讯及提供求诊、住院、探访的实用贴士外，更有卡通短片，让大众对我们了解多一点。欢迎浏览www.ha.org.hk/hkch。
香港儿童医院行政总监李子良医生
香港儿童医院麻醉科顾问医生袁文英医生
香港儿童医院儿科专科驻院医生陈宇轩医生
香港儿童医院筹划组总护士长陈宝妍女士
香港儿童医院高级药剂师潘文康先生
医管局总办事处机构传讯经理舒瑞珍女士
香港儿童医院筹划组总院务主任郭慧敏女士
香港儿童医院高级行政主任（对外关系及筹募）杜蕴慧女士
香港儿童医院一级行政主任（对外关系及筹募）董洁欣女士
香港儿童医院二级行政主任（对外关系及筹募）林瑞敏女士
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如对本通讯有任何意见，欢迎电邮至 enquiry_hkch@ha.org.hk
网上版请浏览 www.ha.org.hk/hkch
The HKCH will commence services by phases starting the fourth quarter of this year. When planning for the commissioning schedule, patient safety has always been our top consideration. Therefore, we will begin by taking stable follow-up cases of oncology and nephrology. This is to ensure that everything will run smoothly and we can offer a quality and convenient service to our patients before we gradually expand to other areas.
Going to a doctor in an outpatient setting is not as simple as it sounds. Patients will go through many procedures including travelling, registration, triage, examinations, consultation, blood-taking, imaging, payment, collecting medications and booking for the next appointment. It involves plenty of IT systems and staff communications. We conducted a drill recently on the whole workflow to iron out any possible issues and draw up contingency plans.
Opening of the specialist outpatient clinic will lay a good foundation for the introduction of more specialties and inpatient service next year, which will be even more complicated. Among all the challenges, we have to ensure seamless translocation of patient services and clinical teams from various regional hospitals. Everyone at HKCH has been working hard towards the same goal.
I must take this opportunity to thank the HA Head Office and all the clusters for their full support. I look forward to a safe start and we will make an all-out effort to serve our children.
Dr Lee Tsz-leung, HKCH Hospital Chief Executive
HKCH will commence service by phases from the fourth quarter of 2018. It will serve as the tertiary referral centre for complex, serious and uncommon paediatric cases, while the paediatric departments in regional hospitals will focus on secondary, emergency and community care.
There is no accident and emergency department nor general outpatient clinic in HKCH. All patients must be referred by registered doctors in public hospitals or the private sector.
The specialist outpatient clinics for paediatric oncology and nephrology will first begin operation. Pathology, radiology and pharmacy services will also be available to support the diagnosis and treatment of such patients. Existing stable cases under the care of Queen Mary Hospital and Prince of Wales Hospital’s children’s cancer centre and Princess Margaret Hospital’s paediatric nephrology team will be among HKCH’s first batch of patients.
Inpatient and ambulatory services will begin gradually in 2019, including paediatric nephrology, paediatric intensive care unit, paediatric oncology, neonatal intensive care unit, paediatric surgery, cleft lip and palate surgery, cardiology and cardiothoracic surgery services.
The first batch of outpatients who would come to HKCH for follow-up are now being informed about the arrangements. So how does the whole process look like? Let us explain to you step-by-step now.
If medications are prescribed
If patient suffers from infectious diseases (e.g. upper respiratory tract infection, vomit, fever, skin rash, chickenpox) on the appointment day, parents should contact the clinic for re-scheduling. Please refer to the information on the appointment slip or ask clinic staff for details.
Inborn errors of metabolism (IEM) may cause serious consequences such as intellectual disability and organ failure. Thanks to genetic technologies, early diagnosis is now possible by means of newborn screening so that treatment can begin before symptoms arise.
HKCH will support the laboratory testing for the government’s newborn screening programme for IEM, as well as follow up all uncertain and confirmed cases. It is also making preparations for the introduction of safeT21 as a second tier screening for Down’s syndrome in HA hospitals.
Following the successful pilot in 2015, the government decided to implement the IEM newborn screening programme territory-wide, covering 24 diseases such as maple syrup urine disease and phenylketonuria. It is now carried out in Queen Elizabeth Hospital, Queen Mary Hospital and Prince of Wales Hospital, and will gradually extend to cover all babies born in public hospitals.
HA Chief Manager (Clinical Effectiveness & Technology Management) Dr Rebecca Lam is responsible for the overall coordination of the screening programme. She said, “Screening capability, clinical significance, availability of treatment and favourable outcome after early treatment were the criteria for determining what diseases to include in the screening. With proper medications and dietary therapy, such diseases can be managed well.”
Timing is especially crucial for this screening, as blood specimen has to be collected from the newborns after they have been fed milk for 24 hours, followed by testing and analysis so that abnormal cases can be referred to a specialist for assessment and follow-up within 14 days after birth. Dr Lam stressed, “Once started, the service cannot be interrupted. It depends on the seamless coordination among all parties.”
15,100 babies were screened in the pilot phase of which nine of them were diagnosed with IEM. “This is exactly why we need to concentrate the service at HKCH, to facilitate accumulation of clinical experience and expertise training.”
Meanwhile, the HA is working to introduce safeT21 as a second-tier screening for Down’s syndrome to reduce the risk to the fetus as in conventional methods such as amniocentesis. Dr Lam said, “High risk pregnant women would be selected to undergo T21 test and HKCH will be responsible for conducting the laboratory testing. We expect there will be about 3,000 cases annually, and this involves massive data volume. Construction of the new hospital provides the space to accommodate the large-size systems.”
To prepare for the beginning of T21 service in the first quarter of 2019, next generation sequencer and HA’s first bioinformatician will be in place, providing foundation for the long-term development of testing and diagnosis of genetic diseases.
For taking good care of child patients from different districts, transport accessibility is particularly vital for the HKCH. At the moment, there are three public transport routes that can directly reach the hospital entrance. More public transport routes are expected to commence operation in the fourth quarter this year. We will keep communicating with the Transport Department, District Councils and other related departments to strive for the strengthening of the transport network.
Current public transport routes to HKCH |
Nearest MTR station |
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Minibus No. 86 |
Between Telford Garden in Kowloon Bay and Kai Tak Cruise Terminal |
Kowloon Bay Station Exit A |
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Citybus No. 22 |
Between Festival Walk in Kowloon Tong and Kai Tak Cruise Terminal |
Kowloon Tong Station |
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KMB No. 5R |
Between apm in Kwun Tong and Kai Tak Cruise Terminal |
Kwun Tong Station Exit A2 / Ngau Tau Kok Station Exit A |
To better meet child patients and parents’ needs, we have recently enriched our website with a brand new look! Besides detailed introduction of clinical services and useful tips on attending follow-up appointments, hospitalisation and visiting arrangements, there is also a cartoon for the public to know more about us. We welcome you to visit the website at www.ha.org.hk/hkch.
Dr Lee Tsz-leung, Hospital Chief Executive, HKCH
Dr Vivian Yuen, Consultant (Anaesthesia), HKCH
Dr Eugene Chan, Resident Specialist (Paediatrics), HKCH
Ms Vivian Chan, Chief Nursing Officer (Commissioning), HKCH
Mr Freddie Poon, Senior Pharmacist, HKCH
Ms Linda Shu, Manager (Corp Comm), HAHO
Ms Miscelle Kwok, Chief Hospital Administrator (Commissioning), HKCH
Ms Vivian To, SEO (External Relations & Donation Management), HKCH
Ms Haze Tung, EOI (External Relations & Donation Management), HKCH
Ms Sarah Lam, EOII (External Relations & Donation Management), HKCH
Copyright © 2018 Hospital Authority
Please send comments and suggestions to enquiry_hkch@ha.org.hk
Read online copy at www.ha.org.hk/hkch